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Juvenile-onset Steinert myotonic dystrophy

MONDO:0035648

Also known as: Juvenile-onset Steinert disease, Juvenile-onset myotonic dystrophy type 1

7 clinical trials for this condition and its sub-types, 2 tagged with Juvenile-onset Steinert myotonic dystrophy itself.

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Where it sits in the disease tree

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Part of

↑ Myotonic dystrophy (57)

Including sub-types (7) Tagged with Juvenile-onset Steinert myotonic dystrophy (2)

Trials to join now! 1 Completed 1

No travel needed: new study uses video calls to uncover genetic secrets of childhood muscle disease

Knowledge-focused Recruiting now

This study aims to learn why myotonic dystrophy type 1 affects children differently than adults, and why symptoms vary even within the same family. Researchers will observe 100 children (ages 0-17) through video calls and simple at-home activities, and analyze their genes from a …

Sponsor: University of Rochester • Aim: Knowledge-focused

Last updated Jun 27, 2026 13:03 UTC