Hereditary pheochromocytoma-paraganglioma

MONDO:0017366

Neoplasm predisposition characterized by an increased risk of paragangliomas (tumors that arise from neuroendocrine tissues distributed along the paravertebral axis from the base of the skull to the pelvis) and pheochromocytomas (paragangliomas that are confined to the adrenal medulla).

Also known as: familial pheochromocytoma-paraganglioma, hereditary paraganglioma-pheochromocytoma syndrome, hereditary pheochromocytoma-paraganglioma, SDHx-related paraganglioma-pheochromocytoma, hereditary paraganglioma-pheochromocytoma

1487 clinical trials for this condition and its sub-types, 6 tagged with Hereditary pheochromocytoma-paraganglioma itself.

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Where it sits in the disease tree

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↑ Neuroendocrine neoplasm (985) ↑ Hereditary neoplastic syndrome (731)

Sub-types of Hereditary pheochromocytoma-paraganglioma

MAX-related tumor predisposition 0 trials
TMEM127-related tumor predisposition 0 trials
Pheochromocytoma/paraganglioma syndrome 1 0 trials
Pheochromocytoma/paraganglioma syndrome 2 0 trials
Pheochromocytoma/paraganglioma syndrome 3 0 trials
Pheochromocytoma/paraganglioma syndrome 4 0 trials
Pheochromocytoma/paraganglioma syndrome 5 0 trials
Pheochromocytoma/paraganglioma syndrome 6 0 trials
Pheochromocytoma/paraganglioma syndrome 7 0 trials

Including sub-types (1487) Tagged with Hereditary pheochromocytoma-paraganglioma (6)

Trials to join now! 2 Not yet finished but already full! 1 Completed 1 Terminated 2

Can Full-Body scans spot cancer early in High-Risk families?

Diagnosis Ongoing

This study is testing whether whole body MRI scans can help find cancers early in children and adults with Li-Fraumeni syndrome, a genetic condition that greatly raises cancer risk. About 150 participants will receive annual whole body MRI scans for four years to see if they keep…

Sponsor: Dana-Farber Cancer Institute • Aim: Diagnosis

Last updated Jun 27, 2026 08:08 UTC

Hereditary pheochromocytoma-paraganglioma

Where it sits in the disease tree

Can Full-Body scans spot cancer early in High-Risk families?