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Hb Bart's hydrops fetalis
MONDO:0015579Alpha thalassemia caused by variation in all four copies of the alpha hemoglobin genes (e.g., homozygous deletion encompassing HBA1 and HBA2).
Also known as: Alpha-thalassemia major, HBA1;HBA2 digenic quadallelic Hb Bart’s hydrops fetalis, Haemoglobin Bart's hydrops fetalis, Hb Bart’s hydrops fetalis caused by quadallelic variation in HBA1;HBA2, Hb Bart’s hydrops fetalis related to quadallelic variation in HBA1 and HBA2, Hemoglobin Bart's hydrops fetalis, alpha-thalassemia hydrops fetalis, homozygous alpha0-thalassemia
19 clinical trials for this condition and its sub-types, 3 tagged with Hb Bart's hydrops fetalis itself.
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New pill may cut blood transfusions for kids with thalassemia
Disease control Recruiting nowThis study tests a drug called mitapivat in children aged 1 to 17 with alpha- or beta-thalassemia who need regular blood transfusions. The goal is to see if mitapivat can reduce the number of transfusions needed compared to a placebo. The study involves 54 participants and lasts …
Phase 3 • Sponsor: Agios Pharmaceuticals, Inc. • Aim: Disease control
Last updated Aug 29, 2026 00:00 UTC
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Can a global registry map the path to better outcomes for alpha thalassemia?
Knowledge-focused Recruiting nowThis international registry follows people with alpha thalassemia, a genetic blood disorder, to learn how the disease progresses and how well fetal treatments work. Researchers will track survival to birth, developmental milestones, and health after birth. The goal is to improve …
Sponsor: University of California, San Francisco • Aim: Knowledge-focused
Last updated Sep 04, 2026 00:00 UTC