Childhood-onset Steinert myotonic dystrophy
MONDO:0035647Also known as: Childhood-onset Steinert disease, Childhood-onset myotonic dystrophy type 1
7 clinical trials for this condition and its sub-types, 2 tagged with Childhood-onset Steinert myotonic dystrophy itself.
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Can we measure the progression of childhood myotonic dystrophy well enough to test new therapies?
Knowledge-focused Recruiting nowThis study follows children with congenital or childhood myotonic dystrophy over time to see how their symptoms change. Researchers will test a range of assessments, from walking speed and hand strength to language and quality of life, to find the best ways to measure the disease…
Sponsor: Virginia Commonwealth University • Aim: Knowledge-focused
Last updated Aug 13, 2026 00:00 UTC
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No travel needed: new study uses video calls to uncover genetic secrets of childhood muscle disease
Knowledge-focused Recruiting nowThis study aims to learn why myotonic dystrophy type 1 affects children differently than adults, and why symptoms vary even within the same family. Researchers will observe 100 children (ages 0-17) through video calls and simple at-home activities, and analyze their genes from a …
Sponsor: University of Rochester • Aim: Knowledge-focused
Last updated Jun 27, 2026 13:03 UTC