Atypical neurofibroma
MONDO:0003306A neurofibroma characterized by the presence of cellular pleomorphism.
1449 clinical trials for this condition and its sub-types, 4 tagged with Atypical neurofibroma itself.
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Blood test could spot rare nerve tumors years earlier in NF1 patients
Knowledge-focused By invitation onlyThis study is testing whether a blood test (liquid biopsy) can detect a rare but serious nerve tumor called MPNST earlier than current methods in adults with Neurofibromatosis Type 1 (NF1). Researchers will compare the timing of tumor detection by the blood test versus standard i…
Sponsor: David Miller • Aim: Knowledge-focused
Last updated Sep 02, 2026 00:00 UTC
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New study aims to predict cancer risk in NF1 patients before it strikes
Knowledge-focused OngoingThis study follows 80 people with Neurofibromatosis type 1 (NF1) who are at high risk for developing malignant peripheral nerve sheath tumors (MPNST). Researchers will use yearly whole-body MRI scans, blood samples, and checkups to track changes in nerve lesions over time. The go…
Sponsor: Johns Hopkins University • Aim: Knowledge-focused
Last updated Jun 27, 2026 08:10 UTC