What's it like to live with a common bleeding disorder? new study finds out.
NCT ID NCT06064643
First seen Nov 01, 2025 · Last updated May 10, 2026 · Updated 31 times
Summary
This study looked at how von Willebrand disease (vWD) affects people's everyday lives, including bleeding, pain, and daily activities. Over 600 adults with vWD from the UK, Ireland, and the US took part in surveys, interviews, and a 30-day bleed diary. No treatments were tested; the goal was simply to learn more about the condition from the patient's perspective.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Oxford University Hospitals NHS Foundation Trust
Oxford, Oxfordshire, OX3 9DU, United Kingdom
Conditions
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