First major study reveals the hidden struggles of a common bleeding disorder
NCT ID NCT06064643
Summary
This study aimed to understand the real-world experiences of people living with von Willebrand disease (vWD), a common inherited bleeding disorder. Researchers surveyed and interviewed 611 diagnosed adults to learn about their symptoms, daily challenges, and quality of life. The goal was to gather knowledge to help improve future care and support for patients and their families.
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Contacts and locations
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Locations
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Oxford University Hospitals NHS Foundation Trust
Oxford, Oxfordshire, OX3 9DU, United Kingdom
Conditions
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