New study tracks bleeding in von willebrand disease to pave way for better treatments
NCT ID NCT06610201
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is for people aged 16 to 70 with von Willebrand disease (VWD), a bleeding disorder. Researchers will collect information on bleeding events, treatments, and quality of life over time. The goal is to understand the real-world impact of VWD and use this data as a baseline for future clinical trials. No experimental treatment is given—this is an observational study.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Arkansas Children's Hospital
RECRUITINGLittle Rock, Arkansas, 72202-3591, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Children's Hospital of Los Angeles
RECRUITINGLos Angeles, California, 90027, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Emory Children's Center
RECRUITINGAtlanta, Georgia, 30329, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Fiona Stanley Hospital
RECRUITINGMurdoch, Perth, WA 6150, Australia
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hemophilia Center of Western Pennsylvania
RECRUITINGPittsburgh, Pennsylvania, 15213, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Innovative Hematology, Inc./Indiana Hemophilia and Thrombosis Center
RECRUITINGIndianapolis, Indiana, 46260, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Mayo Clinic - Rochester
RECRUITINGRochester, Minnesota, 55905, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Oregon Health & Science University
RECRUITINGPortland, Oregon, 97239-3098, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Phoenix Children's Hospital
RECRUITINGPhoenix, Arizona, 85016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Richmond Pharmacology
RECRUITINGLondon, SE1 1YR, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Royal Prince Alfred Hospital
RECRUITINGCamperdown, Sydney, NSW 2050, Australia
Contact Phone: •••-•••-•••• Email: •••••@•••••
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The Alfred Hospital
RECRUITINGMelbourne, Victoria, VIC 3004, Australia
Contact Phone: •••-•••-•••• Email: •••••@•••••
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The University of Texas Southwestern Medical Center
RECRUITINGDallas, Texas, 75390, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Tulane University School of Medicine
RECRUITINGNew Orleans, Louisiana, 70112-2699, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Miami Hospital and Clinics, Sylvester Comprehensive Cancer Center
RECRUITINGMiami, Florida, 33136, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Michigan Hospitals, Department of Hemophilia and Coagulation Disorders
RECRUITINGAnn Arbor, Michigan, 48109, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Washington Institute For Coagulation (WIC)
RECRUITINGSeattle, Washington, 98101, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••