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New study tracks bleeding in von willebrand disease to pave way for better treatments

NCT ID NCT06610201

Recruiting now Knowledge-focused Sponsor: Hemab ApS Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is for people aged 16 to 70 with von Willebrand disease (VWD), a bleeding disorder. Researchers will collect information on bleeding events, treatments, and quality of life over time. The goal is to understand the real-world impact of VWD and use this data as a baseline for future clinical trials. No experimental treatment is given—this is an observational study.

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Conditions

The condition(s) this trial relates to.

von Willebrand disease (hereditary or acquired) von Willebrand disease 1 von Willebrand disease 2 von Willebrand disease 3 von Willebrand disease type 2A von Willebrand disease type 2M von Willebrand disease type 2N

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

VON WILLEBRAND DISEASE (VWD) VON WILLEBRAND DISEASE (VWD), TYPE 1 VON WILLEBRAND DISEASE (VWD), TYPE 2 VON WILLEBRAND DISEASE (VWD), TYPE 3 VON WILLEBRAND DISEASE, TYPE 2A VON WILLEBRAND DISEASE, TYPE 2M VON WILLEBRAND DISEASE, TYPE 2N

Contacts and locations

Locations

  • Arkansas Children's Hospital

    RECRUITING

    Little Rock, Arkansas, 72202-3591, United States

  • Children's Hospital of Los Angeles

    RECRUITING

    Los Angeles, California, 90027, United States

  • Emory Children's Center

    RECRUITING

    Atlanta, Georgia, 30329, United States

  • Fiona Stanley Hospital

    RECRUITING

    Murdoch, Perth, WA 6150, Australia

  • Hemophilia Center of Western Pennsylvania

    RECRUITING

    Pittsburgh, Pennsylvania, 15213, United States

  • Innovative Hematology, Inc./Indiana Hemophilia and Thrombosis Center

    RECRUITING

    Indianapolis, Indiana, 46260, United States

  • Mayo Clinic - Rochester

    RECRUITING

    Rochester, Minnesota, 55905, United States

    Contact Email: •••••@•••••

  • Oregon Health & Science University

    RECRUITING

    Portland, Oregon, 97239-3098, United States

    Contact Email: •••••@•••••

  • Phoenix Children's Hospital

    RECRUITING

    Phoenix, Arizona, 85016, United States

  • Richmond Pharmacology

    RECRUITING

    London, SE1 1YR, United Kingdom

  • Royal Prince Alfred Hospital

    RECRUITING

    Camperdown, Sydney, NSW 2050, Australia

  • The Alfred Hospital

    RECRUITING

    Melbourne, Victoria, VIC 3004, Australia

  • The University of Texas Southwestern Medical Center

    RECRUITING

    Dallas, Texas, 75390, United States

  • Tulane University School of Medicine

    RECRUITING

    New Orleans, Louisiana, 70112-2699, United States

  • University of Miami Hospital and Clinics, Sylvester Comprehensive Cancer Center

    RECRUITING

    Miami, Florida, 33136, United States

  • University of Michigan Hospitals, Department of Hemophilia and Coagulation Disorders

    RECRUITING

    Ann Arbor, Michigan, 48109, United States

  • Washington Institute For Coagulation (WIC)

    RECRUITING

    Seattle, Washington, 98101, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.