New study aims to map Real-World bleeding in von willebrand disease
NCT ID NCT06610201
First seen Nov 01, 2025 · Last updated May 03, 2026 · Updated 27 times
Summary
This study is gathering information about bleeding episodes, quality of life, and treatment use in 200 people with von Willebrand disease (VWD). Participants will report their bleeding events and complete surveys over time. The data will help researchers understand the daily impact of VWD and serve as a baseline for future treatment studies.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for VON WILLEBRAND DISEASE (VWD) are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Arkansas Children's Hospital
RECRUITINGLittle Rock, Arkansas, 72202-3591, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Children's Hospital of Los Angeles
RECRUITINGLos Angeles, California, 90027, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Emory Children's Center
RECRUITINGAtlanta, Georgia, 30329, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Fiona Stanley Hospital
RECRUITINGMurdoch, Perth, WA 6150, Australia
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Hemophilia Center of Western Pennsylvania
RECRUITINGPittsburgh, Pennsylvania, 15213, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Innovative Hematology, Inc./Indiana Hemophilia and Thrombosis Center
RECRUITINGIndianapolis, Indiana, 46260, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Mayo Clinic - Rochester
RECRUITINGRochester, Minnesota, 55905, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Oregon Health & Science University
RECRUITINGPortland, Oregon, 97239-3098, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Phoenix Children's Hospital
RECRUITINGPhoenix, Arizona, 85016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Richmond Pharmacology
RECRUITINGLondon, SE1 1YR, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Royal Prince Alfred Hospital
RECRUITINGCamperdown, Sydney, NSW 2050, Australia
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
The Alfred Hospital
RECRUITINGMelbourne, Victoria, VIC 3004, Australia
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
The University of Texas Southwestern Medical Center
RECRUITINGDallas, Texas, 75390, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Tulane University School of Medicine
RECRUITINGNew Orleans, Louisiana, 70112-2699, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University of Miami Hospital and Clinics, Sylvester Comprehensive Cancer Center
RECRUITINGMiami, Florida, 33136, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
University of Michigan Hospitals, Department of Hemophilia and Coagulation Disorders
RECRUITINGAnn Arbor, Michigan, 48109, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Washington Institute For Coagulation (WIC)
RECRUITINGSeattle, Washington, 98101, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.