Scientists map vision loss to pave way for future treatments
NCT ID NCT03146078
Summary
This study aims to understand how vision declines over time in people with USH2A gene mutations, which cause Usher syndrome type 2a and a form of retinitis pigmentosa. Researchers are following 127 patients for up to 9 years, measuring their vision and retinal health with various tests. The goal is to gather detailed information to help design and measure the effectiveness of future treatment trials.
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Contacts and locations
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Locations
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Baylor Eye Physicians and Surgeons
Houston, Texas, 77030, United States
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Centre hospitalier National d'Ophtalmologie des Quinze-Vingts
Paris, 75012, France
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Hospital for Sick Children
Toronto, Canada
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Kellogg Eye Center, University of Michigan
Ann Arbor, Michigan, 48105, United States
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Massachusetts Eye and Ear
Boston, Massachusetts, 02114, United States
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Moorfields Eye Hospital
London, United Kingdom
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Moran Eye Center, University of Utah
Salt Lake City, Utah, 84107, United States
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OHSU Casey Eye Institute
Portland, Oregon, 97239, United States
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Radboud University
Nijmegen, Netherlands
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Retina Foundation of the Southwest
Dallas, Texas, 75231, United States
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University of California, San Francisco
San Francisco, California, 94143-0344, United States
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University of Tubingen
Tübingen, Germany
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Vitreo-Retinal Associates
Gainesville, Florida, 32607, United States
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Wilmer Eye Institute at Johns Hopkins
Baltimore, Maryland, 21287-9277, United States
Conditions
Explore the condition pages connected to this study.