New study reveals hidden costs of treating PANS with IVIG

NCT ID NCT06818656

First seen Nov 01, 2025 · Last updated May 22, 2026 · Updated 30 times

Summary

This study surveyed 65 families to understand the economic and quality-of-life impact of IVIG treatment for children with PANS or PANDAS. Researchers asked about medical visits, insurance coverage, work and school attendance, and emotional well-being. The goal is to better describe the real-world burden of the condition and its treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Brain Inflammation Collaborative

    Delafield, Wisconsin, 53018, United States

Conditions

Explore the condition pages connected to this study.