Rare hand condition study aims to end guesswork in surgery decisions
NCT ID NCT07404514
First seen Feb 11, 2026 · Last updated May 16, 2026 · Updated 15 times
Summary
This study looks at existing medical records and parent questionnaires from about 28 children with a rare hand condition called ulnar deficiency. The goal is to better understand how the condition changes over time and what factors guide decisions about surgery. No new tests or visits are required—researchers will analyze past data and ask parents about their child's quality of life and hand function.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Hôpitaux Paris Est Val-de-Marne - Centre de Référence des Malformations des Membres
Saint-Maurice, 94410, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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