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New study tracks bleeding episodes and daily life impact in rare bleeding disorder

NCT ID NCT06883240

Recruiting now Knowledge-focused Sponsor: Hoffmann-La Roche Source: ClinicalTrials.gov ↗

First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 30 times

Summary

This study is for people with Type 3 von Willebrand disease, a rare and severe bleeding disorder. Researchers will watch how often bleeding happens and how it affects daily life while participants continue their usual preventive treatment. The goal is to gather real-world information to improve care. About 40 people will take part for at least 24 weeks.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • AOU Careggi

    RECRUITING

    Florence, Tuscany, 50134, Italy

  • Charlotte Maxeke Johannesburg Academic Hospital

    RECRUITING

    Johannesburg, 2193, South Africa

  • Erasmus MC

    RECRUITING

    Rotterdam, 3015 GD, Netherlands

  • Gerinnungszentrum Rhein-Ruhr;Gerinnungsambulanz

    RECRUITING

    Duisburg, 47051, Germany

  • Great Ormond Street Hospital

    RECRUITING

    London, WC1N 3JH, United Kingdom

  • Groupe Hospitalier Necker Enfants Malades

    RECRUITING

    Paris, 75015, France

  • Hopital Claude Huriez - CHU Lille

    RECRUITING

    Lille, 59037, France

  • Hospital Universitario la Paz

    RECRUITING

    Madrid, 28046, Spain

  • Hospital Universtiario Virgen del Rocio

    RECRUITING

    Seville, 41013, Spain

  • Hämophiliezentrum Med. Klinik III/Institut für Transfusionsmedizin

    RECRUITING

    Frankfurt/M., 60590, Germany

  • IPS SURA Industriales Medellín

    RECRUITING

    Medellín, Colombia

  • IRCCS Ca' Granda Ospedale Maggiore Policlinico

    RECRUITING

    Milan, Lombardy, 20122, Italy

  • Instytut Hematologii i Transfuzjologii

    COMPLETED

    Warsaw, 02-776, Poland

  • Kurume University Hospital

    COMPLETED

    Fukuoka, 830-0011, Japan

  • Manchester Royal Infirmary

    RECRUITING

    Manchester, M13 9WL, United Kingdom

  • McGill University Health Center

    RECRUITING

    Montreal, Quebec, H4A 3J1, Canada

  • Sahlgrenska Universitetssjukhuset

    COMPLETED

    Gothenburg, S-413 45, Sweden

  • St Thomas' Hospital

    RECRUITING

    London, SE1 7EH, United Kingdom

  • The Hospital for Sick Children

    COMPLETED

    Toronto, Ontario, M5G 1X8, Canada

  • Tokyo Medical University Hospital

    COMPLETED

    Tokyo, 160-0023, Japan

  • UC Davis

    RECRUITING

    Sacramento, California, 95817, United States

  • UZ Leuven Gasthuisberg

    RECRUITING

    Leuven, 3000, Belgium

  • Universita' Degli Studi La Sapienza-Ist.Di Ematologia

    RECRUITING

    Rome, Lazio, 00161, Italy

  • University of Florida

    RECRUITING

    Gainesville, Florida, 32610, United States

  • University of Minnesota Medical Center

    RECRUITING

    Minneapolis, Minnesota, 55455, United States

  • Universitätsklinikum Bonn

    RECRUITING

    Bonn, 53127, Germany

  • Washington University School of Medicine

    RECRUITING

    St Louis, Missouri, 63110, United States

Conditions

Explore the condition pages connected to this study.

VON WILLEBRAND DISEASE, TYPE 3 VON WILLEBRAND DISEASE, TYPE 3