Researchers track bleeding patterns in rare blood disorder patients

NCT ID NCT06883240

Summary

This study aims to gather real-world information about how well standard preventive treatment works for people with severe Type 3 Von Willebrand Disease, a rare bleeding disorder. Researchers will follow 40 patients for at least 24 weeks to track their bleeding episodes and measure how the disease affects their daily life and well-being. The study observes patients who are already receiving standard care rather than testing a new treatment.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • AOU Careggi

    RECRUITING

    Florence, Tuscany, 50134, Italy

  • Charlotte Maxeke Johannesburg Academic Hospital

    RECRUITING

    Johannesburg, 2193, South Africa

  • Erasmus MC

    RECRUITING

    Rotterdam, 3015 GD, Netherlands

  • Gerinnungszentrum Rhein-Ruhr;Gerinnungsambulanz

    RECRUITING

    Duisburg, 47051, Germany

  • Great Ormond Street Hospital

    RECRUITING

    London, WC1N 3JH, United Kingdom

  • Groupe Hospitalier Necker Enfants Malades

    RECRUITING

    Paris, 75015, France

  • Hopital Claude Huriez - CHU Lille

    RECRUITING

    Lille, 59037, France

  • Hospital Universitario la Paz

    RECRUITING

    Madrid, 28046, Spain

  • Hospital Universtiario Virgen del Rocio

    RECRUITING

    Seville, 41013, Spain

  • Hämophiliezentrum Med. Klinik III/Institut für Transfusionsmedizin

    RECRUITING

    Frankfurt/M., 60590, Germany

  • IPS SURA Industriales Medellín

    RECRUITING

    Medellín, Colombia

  • IRCCS Ca' Granda Ospedale Maggiore Policlinico

    RECRUITING

    Milan, Lombardy, 20122, Italy

  • Instytut Hematologii i Transfuzjologii

    RECRUITING

    Warsaw, 02-776, Poland

  • Kurume University Hospital

    COMPLETED

    Fukuoka, 830-0011, Japan

  • Manchester Royal Infirmary

    RECRUITING

    Manchester, M13 9WL, United Kingdom

  • McGill University Health Center

    RECRUITING

    Montreal, Quebec, H4A 3J1, Canada

  • Sahlgrenska Universitetssjukhuset

    RECRUITING

    Gothenburg, S-413 45, Sweden

  • St Thomas' Hospital

    RECRUITING

    London, SE1 7EH, United Kingdom

  • The Hospital for Sick Children

    COMPLETED

    Toronto, Ontario, M5G 1X8, Canada

  • Tokyo Medical University Hospital

    RECRUITING

    Tokyo, 160-0023, Japan

  • UC Davis

    RECRUITING

    Sacramento, California, 95817, United States

  • UZ Leuven Gasthuisberg

    RECRUITING

    Leuven, 3000, Belgium

  • Universita' Degli Studi La Sapienza-Ist.Di Ematologia

    RECRUITING

    Rome, Lazio, 00161, Italy

  • University of Florida

    RECRUITING

    Gainesville, Florida, 32610, United States

  • University of Minnesota Medical Center

    RECRUITING

    Minneapolis, Minnesota, 55455, United States

  • Universitätsklinikum Bonn

    RECRUITING

    Bonn, 53127, Germany

  • Washington University School of Medicine

    RECRUITING

    St Louis, Missouri, 63110, United States

Conditions

Explore the condition pages connected to this study.