Researchers track bleeding patterns in rare blood disorder patients
NCT ID NCT06883240
Summary
This study aims to gather real-world information about how well standard preventive treatment works for people with severe Type 3 Von Willebrand Disease, a rare bleeding disorder. Researchers will follow 40 patients for at least 24 weeks to track their bleeding episodes and measure how the disease affects their daily life and well-being. The study observes patients who are already receiving standard care rather than testing a new treatment.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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AOU Careggi
RECRUITINGFlorence, Tuscany, 50134, Italy
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Charlotte Maxeke Johannesburg Academic Hospital
RECRUITINGJohannesburg, 2193, South Africa
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Erasmus MC
RECRUITINGRotterdam, 3015 GD, Netherlands
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Gerinnungszentrum Rhein-Ruhr;Gerinnungsambulanz
RECRUITINGDuisburg, 47051, Germany
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Great Ormond Street Hospital
RECRUITINGLondon, WC1N 3JH, United Kingdom
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Groupe Hospitalier Necker Enfants Malades
RECRUITINGParis, 75015, France
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Hopital Claude Huriez - CHU Lille
RECRUITINGLille, 59037, France
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Hospital Universitario la Paz
RECRUITINGMadrid, 28046, Spain
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Hospital Universtiario Virgen del Rocio
RECRUITINGSeville, 41013, Spain
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Hämophiliezentrum Med. Klinik III/Institut für Transfusionsmedizin
RECRUITINGFrankfurt/M., 60590, Germany
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IPS SURA Industriales Medellín
RECRUITINGMedellín, Colombia
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IRCCS Ca' Granda Ospedale Maggiore Policlinico
RECRUITINGMilan, Lombardy, 20122, Italy
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Instytut Hematologii i Transfuzjologii
RECRUITINGWarsaw, 02-776, Poland
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Kurume University Hospital
COMPLETEDFukuoka, 830-0011, Japan
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Manchester Royal Infirmary
RECRUITINGManchester, M13 9WL, United Kingdom
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McGill University Health Center
RECRUITINGMontreal, Quebec, H4A 3J1, Canada
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Sahlgrenska Universitetssjukhuset
RECRUITINGGothenburg, S-413 45, Sweden
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St Thomas' Hospital
RECRUITINGLondon, SE1 7EH, United Kingdom
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The Hospital for Sick Children
COMPLETEDToronto, Ontario, M5G 1X8, Canada
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Tokyo Medical University Hospital
RECRUITINGTokyo, 160-0023, Japan
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UC Davis
RECRUITINGSacramento, California, 95817, United States
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UZ Leuven Gasthuisberg
RECRUITINGLeuven, 3000, Belgium
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Universita' Degli Studi La Sapienza-Ist.Di Ematologia
RECRUITINGRome, Lazio, 00161, Italy
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University of Florida
RECRUITINGGainesville, Florida, 32610, United States
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University of Minnesota Medical Center
RECRUITINGMinneapolis, Minnesota, 55455, United States
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Universitätsklinikum Bonn
RECRUITINGBonn, 53127, Germany
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Washington University School of Medicine
RECRUITINGSt Louis, Missouri, 63110, United States
Conditions
Explore the condition pages connected to this study.