New oil therapy could slash Life-Threatening events in kids with rare metabolic disease
NCT ID NCT05933200
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study tests whether triheptanoin, a special oil, can reduce major clinical events (like severe low blood sugar or heart problems) in children with long-chain fatty acid oxidation disorders (LC-FAOD), a rare condition where the body can't break down certain fats for energy. About 69 kids under 18 will receive either triheptanoin or a standard MCT oil, and researchers will track how often serious events occur over time. The goal is to see if triheptanoin offers better disease control than current treatments.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for LONG-CHAIN FATTY ACID OXIDATION DISORDERS (LC-FAOD) are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Cerrahpasa Medical Faculty
Istanbul, 34116, Turkey (Türkiye)
-
Cukurova University
Adana, Turkey (Türkiye)
-
Ege University
Bornova-İzmir, Turkey (Türkiye)
-
Gazi University
Ankara, Turkey (Türkiye)
-
Gdańksi Uniwersytet Medyczny
Gdansk, Pomeranian Voivodeship, 80-952, Poland
-
General University Hospital in Prague-GUH (Všeobecná fakultní nemocnice v Praze- VFN)
Prague, 120-08, Czechia
-
Instytut Pomnik-Centrum Zdrowia Dziecka
Warsaw, Masovian Voivodeship, 04-730, Poland
-
Istanbul Universitesi Istanbul Tip Fakultesi Hastanesi
Istanbul, 34093, Turkey (Türkiye)
-
Juntendo University Hospital
Bunkyo City, Tokyo, 113-8431, Japan
-
King Faisal Specialist Hospital & Research Centre
Riyadh, 11211, Saudi Arabia
-
Sant Joan de Deu Hospital (SJD)
Barcelona, Esplugues de Llobregat, 08950, Spain
-
The Jikei University Hospital
Minato, Tokyo, Japan
-
University Hospital 12 de Octubre
Madrid, 28041, Spain
-
University Hospital Santiago de Compostela
A Coruña, 15706, Spain
-
Universitätsklinikum Freiburg
Freiburg im Breisgau, 79106, Germany