New study tracks rare bone disease patients over time

NCT ID NCT04783428

First seen Nov 01, 2025 · Last updated May 17, 2026 · Updated 23 times

Summary

This study follows 23 people with tumor-induced osteomalacia (TIO), a rare condition where tumors cause weak bones. It aims to see how well the drug burosumab works over time and to track any tumor changes. Participants are already taking burosumab as prescribed by their doctor, and researchers will monitor their health through blood tests, imaging, and surveys.

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Contacts and locations

Locations

  • IDIM - Instituto de Diagnóstico e Investigaciones Metabólicas

    Buenos Aires, Argentina

  • Indiana University

    Bloomington, Indiana, 47405, United States

  • Johns Hopkins University

    Baltimore, Maryland, 21218, United States

  • University of Virginia

    Charlottesville, Virginia, 22908, United States

  • Vanderbilt University Medical Center

    Nashville, Tennessee, 37235, United States

  • Yale University

    New Haven, Connecticut, 06520, United States

Conditions

Explore the condition pages connected to this study.