Can a Web-Based program boost life skills in young people with genetic conditions?
NCT ID NCT07563218
First seen May 08, 2026 · Last updated Jun 12, 2026 · Updated 7 times
Summary
This study tests a family-centered online program called I-TOPS for adolescents and young adults (ages 11-39) with genetic syndromes that affect the brain. The program aims to improve problem-solving, self-control, and communication skills through home-based modules and video chats with a psychologist. Researchers will measure changes in behavior and thinking skills reported by participants and their caregivers. The goal is to see if this telehealth approach is practical and effective for this group.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Scientific Institute, IRCCS E. Medea, Bosisio Parini, Lecco, Italy
RECRUITINGBosisio Parini, Lecco, 23842, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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