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Swiss registry aims to map rare neuroendocrine tumors

NCT ID NCT01039922

Knowledge-focused Sponsor: Insel Gruppe AG, University Hospital Bern Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early This study
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Sep 11, 2026 · Last updated Sep 11, 2026

Summary

Neuroendocrine tumors of the gut and pancreas are rare and not well understood, which makes treatment decisions hard. The SwissNET registry collects health information from patients across Switzerland who have these tumors. Researchers will track tumor types, treatments used, and outcomes like mortality and hospital stays. The goal is to learn more about these tumors and how best to manage them.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If the registry succeeds, it could help doctors better understand neuroendocrine tumors and improve how they choose treatments.
What could go wrong
This is an observational registry, not a treatment trial, so it cannot prove that any treatment works. Results depend on how many patients and hospitals take part.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 1,245 people

The number the study aims to enrol. It can still change while the study runs.

Start date

Jan 2008

Finished

Aug 2025

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Patients will be selected either through the report of a pathological institute or of any medical doctor within Switzerland treating patients with neuroendocrine tumours.

Ages

Children (under 18), adults (18 to 64) and older adults (65 and over)

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Neuroendocrine tumor irrespective of primary tumor location * Diagnosis in Switzerland * Given informed consent

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Conditions

The condition(s) this trial relates to.

carcinoid tumor digestive system neuroendocrine tumor, grade 1/2 neuroendocrine neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Carcinoid tumor Neuroendocrine tumors

Contacts and locations

Locations

  • Bezirksspital Affoltern

    Affoltern am Albis, Switzerland

  • Bürgerspital Solothurn

    Solothurn, Switzerland

  • Centre hospitalier du centre du Valais

    Sion, Switzerland

  • Centre hospitalier universitaire vaudois, CHUV

    Lausanne, Switzerland

  • Div. of Endocrinology, Diabetes and Clinical Nutrition, Bern University Hospital

    Bern, 3010, Switzerland

  • Fmi Spital Interlaken

    Interlaken, Switzerland

  • Gesundheitszentrum Fricktal

    Rheinfelden, Switzerland

  • Hirslandenklinik St. Anna

    Lucerne, Switzerland

  • Hôpital du Jura

    Delémont, Switzerland

  • Hôpitaux Universitaires de Genève

    Geneva, Switzerland

  • Istituto oncologico della Svizzera italiana

    Bellinzona, Switzerland

  • Kantonsspital Aarau

    Aarau, Switzerland

  • Kantonsspital Bruderholz

    Bruderholz, Switzerland

  • Kantonsspital Chur

    Chur, Switzerland

  • Kantonsspital Laufen

    Laufen, Switzerland

  • Kantonsspital Liestal

    Liestal, Switzerland

  • Kantonsspital Luzern

    Lucerne, Switzerland

  • Kantonsspital Münsterlingen

    Münsterlingen, Switzerland

  • Kantonsspital Nidwalden

    Stans, Switzerland

  • Kantonsspital Obwalden

    Sarnen, Switzerland

  • Kantonsspital Olten

    Olten, Switzerland

  • Kantonsspital St. Gallen

    Sankt Gallen, Switzerland

  • Kantonsspital Sursee, Luzern

    Lucerne, Switzerland

  • Kantonsspital Uri, Altdorf

    Altdorf, Switzerland

  • Kantonsspital Winterthur

    Winterthur, Switzerland

  • Kantonsspital Wolhusen

    Wolhusen, Switzerland

  • Kreisspital Männedorf

    Männedorf, Switzerland

  • Pathologie Medica Zürich

    Zurich, Switzerland

  • Private practise Dr. Mannhart

    Churwalden, Switzerland

  • Privatpraxis Dr. H.J. Poths

    Seuzach Dorf, Switzerland

  • Regionalspital Einsiedeln

    Einsiedeln, Switzerland

  • Regionalspital Visp

    Visp, Switzerland

  • Regionsspital Emmental

    Burgdorf, Switzerland

  • STS AG Spital Zweisimmen

    Zweisimmen, Switzerland

  • See-Spital Horgen

    Horgen, Switzerland

  • Spital Dornach

    Dornach, Switzerland

  • Spital Grabs

    Grabs, Switzerland

  • Spital Lachen

    Lachen, Switzerland

  • Spital Limmattal

    Schlieren, Switzerland

  • Spital Region Oberaargau

    Langenthal, Switzerland

  • Spital Schwyz

    Schwyz, Switzerland

  • Spital Tiefenau, Spitalnetz Bern

    Bern, Switzerland

  • Spital Uster

    Uster, Switzerland

  • Spital Zimmerberg

    Horgen, Switzerland

  • Spital Zollikerberg

    Zollikerberg, Switzerland

  • Spitalnetz Bern Aarberg

    Aarberg, Switzerland

  • Spitalzentrum Biel - Bienne

    Biel, Switzerland

  • St. Claraspital

    Basel, Switzerland

  • Stadtspital Triemli

    Zurich, Switzerland

  • Stadtspital Waid

    Zurich, Switzerland

  • Thun Spital STS AG

    Thun, Switzerland

  • Universitätsspital Basel

    Basel, Switzerland

  • Universitätsspital Zürich

    Zurich, Switzerland

  • Zieglerspital Bern

    Bern, Switzerland

  • Zuger Kantonsspital AG

    Zug, Switzerland

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