Scientists launch major effort to map rare brain disorder
NCT ID NCT01425944
Summary
This study aims to gather detailed information to better understand Sturge-Weber Syndrome (SWS), a rare condition affecting brain blood vessels. Researchers will collect health data and images from 600 participants with SWS to learn how the disease progresses over time. The goal is to build knowledge that can lead to better future treatments and care.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for STURGE-WEBER SYNDROME are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Baylor College of Medicine/Texas Children's Hospital
Houston, Texas, 77030, United States
-
Cincinnati Children's Hospital
Cincinnati, Ohio, 45229, United States
-
Kennedy Krieger Institute
Baltimore, Maryland, 21205, United States
-
Nationwide Children's Hospital
Columbus, Ohio, 43205, United States
-
New York University
New York, New York, 10016, United States
-
Wayne State University/Children's Hospital of Michigan
Detroit, Michigan, 48201, United States
-
Wills Eye Institute
Philadelphia, Pennsylvania, 19107, United States
Conditions
Explore the condition pages connected to this study.