Scientists track devastating rare diseases in search for clues
NCT ID NCT00029965
Summary
This study aims to understand how a group of rare, fatal brain disorders progress over time. Researchers will observe up to 200 patients with confirmed diagnoses, tracking their health through exams, surveys, and sample collection. The goal is to map the course of these diseases and find biological markers to help design future treatment trials.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.