Eye surgery trial to prevent blindness in stickler syndrome pulled before start
NCT ID NCT04465188
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study aimed to see if a surgical procedure called scleral buckling could prevent retinal detachment in people with Stickler syndrome, a genetic condition that raises the risk of vision loss. The plan was to treat one eye in patients aged 5 to 35 who had already lost vision in the other eye. However, the trial was withdrawn before enrolling any participants, so no conclusions can be drawn.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
scleral buckle surgical procedure
What this could lead to
If it had worked, this could have pointed toward a way to prevent retinal detachment and vision loss in people with Stickler syndrome.
What could go wrong
The trial was withdrawn before it started, so no results are available. Even if it had run, it was a small early-phase study, and surgery carries risks like infection or bleeding.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Hôpital Cochin
Paris, 75014, France