New registry aims to unlock secrets of rare spine tumors

NCT ID NCT02790983

Recruiting now Knowledge-focused Sponsor: AO Innovation Translation Center Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is creating a large database of people diagnosed with primary tumors of the spine. Researchers will collect information on treatments, survival, tumor recurrence, complications, and quality of life. The goal is to better understand these rare tumors and improve future care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this registry could help doctors better predict outcomes and choose the best treatments for people with primary spine tumors.

What could go wrong

This is an observational registry, not a treatment trial, so it won't directly test a new therapy. Results depend on the quality of data collected from many centers.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

neoplasm spinal cord neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

SPINAL COLUMN TUMOR

Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

IRCCS Istituto Ortopedico Galeazzi
RECRUITING

Milan, 20161, Italy

Contact Email: •••••@•••••
Istituto Ortopedico Rizzoli
RECRUITING

Bologna, 40136, Italy

Contact Email: •••••@•••••
Johns Hopkins University School of Medicine
RECRUITING

Baltimore, Maryland, 21205, United States

Contact Email: •••••@•••••
Kanazawa Medical University Hospital
TERMINATED

Kanazawa, 920-8641, Japan
Massachusetts General Hospital
RECRUITING

Boston, Massachusetts, 02114, United States

Contact Email: •••••@•••••
Mayo Clinic
RECRUITING

Rochester, Minnesota, 55905, United States

Contact Email: •••••@•••••
Memorial Sloan Kettering Cancer Center
RECRUITING

New York, New York, 1275, United States

Contact Email: •••••@•••••
Memorial Sloan-Kettering Cancer Center
WITHDRAWN

New York, New York, 10065, United States
National Center for Spinal Disorders and Buda Health Center
RECRUITING

Budapest, 1126, Hungary

Contact Email: •••••@•••••
Oxford University Hospitals
RECRUITING

Oxford, OX3 7HE, United Kingdom

Contact Email: •••••@•••••
Peking University 3rd Hospital
RECRUITING

Beijing, Beijing Municipality, 100191, China

Contact Email: •••••@•••••
Rhode Island Hospital
RECRUITING

Providence, Rhode Island, 02903, United States

Contact Email: •••••@•••••
The University of Texas M.D. Anderson Cancer Center
RECRUITING

Houston, Texas, 77030, United States

Contact Email: •••••@•••••
Toronto Western Hospital
TERMINATED

Toronto, Ontario, M5T 2S8, Canada
UCSF Medical Center
RECRUITING

San Francisco, California, 94134, United States

Contact Phone: •••-•••-•••• Email: •••••@•••••
Universitaetsklinikum Carl Gustav Carus der Techn. Universitaet - Dresden
RECRUITING

Dresden, 1307, Germany

Contact Email: •••••@•••••
University of California
TERMINATED

Los Angeles, California, 90095, United States
University of Queensland, School of Medicine
WITHDRAWN

Brisbane, 4000 QLD, Australia
Vancouver General Hospital and the University of British Columbia
RECRUITING

Vancouver, British Columbia, V5Z 1M9, Canada

Contact Email: •••••@•••••