Rare disease youth face tough road to school and work – new study aims to help

NCT ID NCT07527624

First seen Apr 25, 2026 · Last updated Apr 29, 2026 · Updated 1 time

Summary

This study looks at the difficulties young people aged 15 to 25 with rare genetic diseases face when trying to get into training programs, college, or jobs. Researchers will follow 300 participants to see what helps or hurts their success. The goal is to find ways to better support them in school and work.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for RARE DISEASES are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Imagine Clinical Research

    RECRUITING

    Paris, Île-de-France Region, 75015, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.