Researchers ask: what do families think about gene studies for sickle cell?
NCT ID NCT04416178
Summary
This study aims to understand the attitudes and concerns of parents and adolescents with sickle cell disease regarding genetic research and clinical trials. Researchers will conduct interviews and surveys with families to learn about their knowledge, trust in healthcare providers, and expectations. The information will be used to create a web-based educational tool to help families better understand treatment options and improve communication with their doctors.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for SICKLE CELL DISEASE are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
St. Jude Children's Research Hospital
RECRUITINGMemphis, Tennessee, 38105, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
Explore the condition pages connected to this study.