Massive 10,000-Person study aims to unlock secrets of sickle cell disease across a lifetime
NCT ID NCT02098863
Summary
This study aims to understand how sickle cell disease affects people's health over their entire lifetime, from childhood into adulthood. Researchers will follow 10,000 participants, collecting health data during their regular doctor visits to see how the disease progresses and how treatments like hydroxyurea work long-term. The goal is to identify risks for organ damage and improve future care by building a detailed picture of the disease.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Children's Hospital of Illinois at OSF-Saint Francis Medical Center
RECRUITINGPeoria, Illinois, 61637, United States
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Methodist Adult Comprehensive Sickle Cell Center
RECRUITINGMemphis, Tennessee, 38104, United States
Contact
Contact Phone: •••-•••-••••
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Novant Health Hemby Children's Hospital
RECRUITINGCharlotte, North Carolina, 28204, United States
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Contact Phone: •••-•••-••••
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Our Lady of the Lake Regional Medical Center
COMPLETEDBaton Rouge, Louisiana, 70808, United States
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Regional One Health, Diggs-Kraus Sickle Cell Center
RECRUITINGMemphis, Tennessee, 38103, United States
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Contact Phone: •••-•••-••••
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St. Jude Children's Research Hospital
RECRUITINGMemphis, Tennessee, 38105, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
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