New decision aid aims to ease tough choices for rare heart defect
NCT ID NCT07544979
First seen Jun 27, 2026 · Last updated Aug 12, 2026 · Updated 2 times
Summary
This study is creating a decision aid for people with a rare heart condition called right anomalous aortic origin of a coronary artery (R-AAOCA). The condition raises the risk of sudden cardiac death, but the best management—surgery or careful observation—isn't clear. The aid will help patients, families, and doctors weigh the options together. Researchers will test the tool in 60 participants aged 10-35 to see if it improves shared decision-making, comfort with the choice, and quality of life.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- Active substance
- decision aid
- What this could lead to
- If successful, this tool could help patients and families feel more confident and less anxious when choosing between surgery or monitoring for right AAOCA.
- What could go wrong
- This is a small pilot study (60 participants) testing a new tool, not a treatment. The aid may not improve decision-making or quality of life as hoped.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Boston Children's Hospital
NOT_YET_RECRUITINGBoston, Massachusetts, 02115, United States
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Children's Hospital of Philadelphia
NOT_YET_RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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Dell Children's Medical Center
NOT_YET_RECRUITINGAustin, Texas, 78723, United States
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Texas Children's Hospital
NOT_YET_RECRUITINGHouston, Texas, 77030, United States
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Vanderbilt University Medical Center
RECRUITINGNashville, Tennessee, 37232, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.