New decision aid aims to ease tough choices for rare heart defect
NCT ID NCT07544979
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is creating a decision aid for people with a rare heart condition called right anomalous aortic origin of a coronary artery (R-AAOCA). The condition raises the risk of sudden cardiac death, but the best management—surgery or careful observation—isn't clear. The aid will help patients, families, and doctors weigh the options together. Researchers will test the tool in 60 participants aged 10-35 to see if it improves shared decision-making, comfort with the choice, and quality of life.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
decision aid
What this could lead to
If successful, this tool could help patients and families feel more confident and less anxious when choosing between surgery or monitoring for right AAOCA.
What could go wrong
This is a small pilot study (60 participants) testing a new tool, not a treatment. The aid may not improve decision-making or quality of life as hoped.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Boston Children's Hospital
Boston, Massachusetts, 02115, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Dell Children's Medical Center
Austin, Texas, 78723, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Texas Children's Hospital
Houston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Vanderbilt University Medical Center
Nashville, Tennessee, 37232, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••