Can a smartphone app track muscle disease from home?
NCT ID NCT05812144
First seen Feb 14, 2026 · Last updated May 24, 2026 · Updated 13 times
Summary
This study tested whether a mobile app (myFSHD) can help doctors remotely monitor people with Facioscapulohumeral muscular dystrophy (FSHD). Seventy adults with FSHD used the app for 12 months to report symptoms and record videos of exercises. The goal was to see if remote monitoring is feasible and reliable, which could make future clinical trials easier and more patient-friendly.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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CHRU de Lille
Lille, Hauts-de-France, 59000, France
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CHU de Nice
Nice, Provence-Alpes-Côte d'Azur Region, 06000, France
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Institut de Myologie
Paris, Île-de-France Region, 75013, France
Conditions
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