Massive heart study tracks 1,600 patients to see how new drug performs in real life

NCT ID NCT05489705

Summary

This study is a large registry that aims to observe and collect information on how patients with a specific heart condition called obstructive hypertrophic cardiomyopathy (HCM) are treated and how they fare over time in the real world. It will follow 1,600 adults in the US and Europe who are either taking a newer drug called mavacamten, other standard treatments, or no treatment due to intolerance. The main goal is to gather knowledge on treatment patterns, safety, and long-term health outcomes, not to test a new cure.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

Locations

  • AHN Allegheny General Hospital

    RECRUITING

    Pittsburgh, Pennsylvania, 15212, United States

    Contact Phone: •••-•••-••••

  • Alaska Heart Institute

    RECRUITING

    Anchorage, Alaska, 99508, United States

    Contact Phone: •••-•••-••••

  • BI Research Center

    RECRUITING

    Houston, Texas, 77084, United States

    Contact Phone: •••-•••-••••

  • Bassett Medical Center

    RECRUITING

    Cooperstown, New York, 13326, United States

    Contact Phone: •••-•••-••••

  • Baylor Scott & White Medical Centre - Temple

    RECRUITING

    Temple, Texas, 76508, United States

    Contact Phone: •••-•••-••••

  • Baylor Scott & White Research Institute

    RECRUITING

    Dallas, Texas, 75246, United States

    Contact

  • Baylor Scott & White The Heart Hospital Plano

    RECRUITING

    Plano, Texas, 75093, United States

    Contact Phone: •••-•••-••••

  • CHI Health Reseach Center

    RECRUITING

    Omaha, Nebraska, 68124, United States

    Contact

  • CHU Amiens-Picardie

    RECRUITING

    Amiens, Somme, 80054, France

    Contact Phone: •••-•••-••••

  • CHU De Poitiers - Hopital De La Miletrie

    RECRUITING

    Poitiers, Vienne, 86000, France

    Contact Phone: •••-•••-••••

  • CHU Nantes Hopital Nord Laennec

    RECRUITING

    Saint-Herblain, Loire Atlantique, 44800, France

    Contact Phone: •••-•••-••••

  • Cardiology Associates Research, Llc

    RECRUITING

    Tupelo, Mississippi, 38801, United States

    Contact Phone: •••-•••-••••

  • Carilion Clinic; Virginia Tech-Carilion School of Medicine

    RECRUITING

    Roanoke, Virginia, 24014, United States

    Contact Phone: •••-•••-••••

  • Centre Hospitalier Haguenau

    RECRUITING

    Haguenau, Bas Rhin, 67500, France

    Contact Phone: •••-•••-••••

  • Christ Hospital Health Network

    RECRUITING

    Cincinnati, Ohio, 45219, United States

    Contact Phone: •••-•••-••••

  • Cleveland Clinic

    RECRUITING

    Cleveland, Ohio, 44195, United States

    Contact Phone: •••-•••-••••

  • Duke University Health System

    RECRUITING

    Durham, North Carolina, 27710, United States

    Contact

  • Focus Clinical Research

    RECRUITING

    Charlotte, North Carolina, 28207, United States

    Contact Phone: •••-•••-••••

  • Franciscan Physician Network-Indiana Heart Physicians

    RECRUITING

    Indianapolis, Indiana, 46237, United States

    Contact Phone: •••-•••-••••

  • Geisinger Health System

    RECRUITING

    Wilkes-Barre, Pennsylvania, 18711, United States

    Contact Phone: •••-•••-••••

  • Hackensack University Medical Center

    RECRUITING

    Hackensack, New Jersey, 07601, United States

    Contact Phone: •••-•••-••••

  • Hartford HealthCare

    RECRUITING

    Hartford, Connecticut, 06106, United States

    Contact Phone: •••-•••-••••

  • Harvard (Massachusetts General Hospital)

    RECRUITING

    Boston, Massachusetts, 02114, United States

    Contact Phone: •••-•••-••••

  • Harvard Medical School - Brigham and Women's Hospital (BWH)

    RECRUITING

    Boston, Massachusetts, 02215, United States

    Contact Phone: •••-•••-••••

  • Henry Ford Health System

    RECRUITING

    West Bloomfield, Michigan, 48322, United States

    Contact

  • Hospital Clinico San Carlos

    RECRUITING

    Madrid, 28040, Spain

    Contact Phone: •••-•••-••••

  • Hospital Clinico Universitario Virgen de La Victoria

    RECRUITING

    Málaga, 29010, Spain

    Contact Phone: •••-•••-••••

  • Hospital Fundacion Son Llatzer

    RECRUITING

    Palma de Mallorca, Balearic Islands, 07198, Spain

    Contact Phone: •••-•••-••••

  • Hospital Universitario Central de Asturias

    RECRUITING

    Oviedo, Principality of Asturias, 33011, Spain

    Contact Phone: •••-•••-••••

  • Hospital Universitario Puerta de Hierro Majadahonda

    RECRUITING

    Majadahonda, Madrid, 28222, Spain

    Contact Phone: •••-•••-••••

  • Hospital Universitario Virgen de La Arrixaca

    RECRUITING

    El Palmar, Murcia, 30120, Spain

    Contact Phone: •••-•••-••••

  • Hospital Universitario de Burgos

    RECRUITING

    Burgos, 09006, Spain

    Contact Phone: •••-•••-••••

  • Hôpital Saint Vincent-de-Paul

    RECRUITING

    Lille, Nord, 59000, France

    Contact Phone: •••-•••-••••

  • Hôpital Sainte Musse

    RECRUITING

    Toulon, Var, 83000, France

    Contact Phone: •••-•••-••••

  • Immanuel Klinikum Bernau

    RECRUITING

    Bernau, State of Berlin, 16321, Germany

    Contact Phone: •••-•••-••••

  • Imperial College Healthcare NHS Trust

    RECRUITING

    London, Greater London, W6 8RF, United Kingdom

    Contact Phone: •••-•••-••••

  • Indiana. University

    RECRUITING

    Indianapolis, Indiana, 46202, United States

    Contact Phone: •••-•••-••••

  • KH St.Josef Braunau am Inn

    RECRUITING

    Braunau am Inn, 5280, Austria

    Contact Phone: •••-•••-••••

  • Kardiologische und angiologische Praxen im Spreebogen

    RECRUITING

    Berlin, 10719, Germany

    Contact Phone: •••-•••-••••

  • Keck School of Medicine of USC-Usc

    RECRUITING

    Los Angeles, California, 90033, United States

    Contact Phone: •••-•••-••••

  • Kepler Universitätsklinikum Linz

    RECRUITING

    Linz, 4021, Austria

    Contact Phone: •••-•••-••••

  • LKH-Univ. Klinikum Graz

    RECRUITING

    Graz, 8036, Austria

    Contact Phone: •••-•••-••••

  • Lancaster General Hospital

    RECRUITING

    Lancaster, Pennsylvania, 17603, United States

    Contact Phone: •••-•••-••••

  • Leeds General Infirmary

    RECRUITING

    Leeds, West Yorkshire, LS1 3EX, United Kingdom

    Contact Phone: •••-•••-••••

  • Liverpool Heart and Chest Hospital

    RECRUITING

    Liverpool, Merseyside, L14 3PE, United Kingdom

    Contact Phone: •••-•••-••••

  • Local Institution - 0083

    NOT_YET_RECRUITING

    Vienna, 1090, Austria

    Contact

  • Local Institution - 0084

    WITHDRAWN

    Klagenfurt, 9020, Austria

  • Local Institution - 0085

    NOT_YET_RECRUITING

    Sankt Pölten, 3100, Austria

    Contact

  • Local Institution - 0088

    NOT_YET_RECRUITING

    Innsbruck, 6020, Austria

    Contact

  • Local Institution - 0101

    WITHDRAWN

    Erlangen, Bavaria, 91054, Germany

  • Local Institution - 0102

    WITHDRAWN

    Madrid, 28007, Spain

  • Local Institution - 0113

    NOT_YET_RECRUITING

    London, Greater London, SW3 6NP, United Kingdom

    Contact

  • Local Institution - 0117

    WITHDRAWN

    Montpellier, 34000, France

  • MedStar Health Research Institute

    RECRUITING

    Baltimore, Maryland, 21218, United States

    Contact

  • MedStar Washington Hospital Center

    RECRUITING

    Washington D.C., District of Columbia, 20010, United States

    Contact Phone: •••-•••-••••

  • Medical College of Wisconsin, Inc (PI Address)

    RECRUITING

    Milwaukee, Wisconsin, 53226, United States

    Contact Phone: •••-•••-••••

  • Minneapolis Heart Institute Foundation

    RECRUITING

    Minneapolis, Minnesota, 55407, United States

    Contact Phone: •••-•••-••••

  • Morristown Medical Center

    RECRUITING

    Morristown, New Jersey, 07960, United States

    Contact Phone: •••-•••-••••

  • Mount Sinai Hospital

    RECRUITING

    New York, New York, 10029, United States

    Contact Phone: •••-•••-••••

  • Mount Sinai West

    RECRUITING

    New York, New York, 10019, United States

    Contact Phone: •••-•••-••••

  • North Texas Cardiology Center

    RECRUITING

    Dallas, Texas, 75208, United States

    Contact Phone: •••-•••-••••

  • Northwell Health

    RECRUITING

    Manhasset, New York, 11030, United States

    Contact Phone: •••-•••-••••

  • Ostalb-Klinikum Aalen

    RECRUITING

    Aalen, Baden-Wurttemberg, 73430, Germany

    Contact Phone: •••-•••-••••

  • Pima Heart and Vascular

    RECRUITING

    Tucson, Arizona, 85704, United States

    Contact Phone: •••-•••-••••

  • Praxisklinik Herz Und Gefasse-Klinikum Weisser Hirsch

    RECRUITING

    Dresden, Saxony, 01099, Germany

    Contact Phone: •••-•••-••••

  • Prisma Health - Upstate

    RECRUITING

    Greenville, South Carolina, 29605, United States

    Contact Phone: •••-•••-••••

  • Research & Cardiovascular Corp

    RECRUITING

    Ponce, 00717-1322, Puerto Rico

    Contact Phone: •••-•••-••••

  • Saint Francis Hospital

    RECRUITING

    Roslyn, New York, 11576, United States

    Contact Phone: •••-•••-••••

  • Saint Thomas Health

    RECRUITING

    Nashville, Tennessee, 37205-2018, United States

    Contact Phone: •••-•••-••••

  • Spectrum Health Medical Group

    RECRUITING

    Grand Rapids, Michigan, 49525, United States

    Contact Phone: •••-•••-••••

  • St. Luke's Mid-America Heart Institute

    RECRUITING

    Kansas City, Missouri, 64111, United States

    Contact

  • St. Luke's University Health Network

    RECRUITING

    Bethlehem, Pennsylvania, 18015, United States

    Contact Phone: •••-•••-••••

  • Stanford Health Care Hospital & Clinics

    RECRUITING

    Palo Alto, California, 94304, United States

    Contact

  • The Methodist Hospital, Methodist Cancer Cencer

    RECRUITING

    Houston, Texas, 77030, United States

    Contact Phone: •••-•••-••••

  • The Rector and Visitors of the Univ of Virginia

    RECRUITING

    Charlottesville, Virginia, 22908, United States

    Contact Phone: •••-•••-••••

  • Tristar Centennial Medical Ctr

    RECRUITING

    Nashville, Tennessee, 37203, United States

    Contact Phone: •••-•••-••••

  • UAMS

    RECRUITING

    Little Rock, Arkansas, 72205-7199, United States

    Contact Phone: •••-•••-••••

  • UC Denver, AMC

    RECRUITING

    Aurora, Colorado, 48377, United States

    Contact Phone: •••-•••-••••

  • UC San Diego School of Medicine

    RECRUITING

    La Jolla, California, 92037, United States

    Contact Phone: •••-•••-••••

  • Uf Health Jacksonville

    RECRUITING

    Jacksonville, Florida, 32209, United States

    Contact Phone: •••-•••-••••

  • Universitaetsklinikum Leipzig Aoer

    RECRUITING

    Leipzig, Saxony, 04103, Germany

    Contact Phone: •••-•••-••••

  • Universitatsklinikum Muenster

    RECRUITING

    Münster, North Rhine-Westphalia, 48149, Germany

    Contact Phone: •••-•••-••••

  • University Hospital of Wales

    RECRUITING

    Cardiff, CF14 4XW, United Kingdom

    Contact Phone: •••-•••-••••

  • University Hospitals Birmingham NHS Foundation Trust

    RECRUITING

    Birmingham, West Midlands, B15 2GW, United Kingdom

    Contact Phone: •••-•••-••••

  • University Hospitals Cleveland Medical Center

    RECRUITING

    Cleveland, Ohio, 44106, United States

    Contact Phone: •••-•••-••••

  • University Of California San Francisco Medical Center

    RECRUITING

    San Francisco, California, 94117, United States

    Contact

  • University Of Kansas Medical Center & Medical Pavilion

    RECRUITING

    Kansas City, Kansas, 66160, United States

    Contact

  • University Of Manchester

    RECRUITING

    Manchester, Greater Manchester, M13 9WL, United Kingdom

    Contact Phone: •••-•••-••••

  • University Of Maryland, Ihv

    RECRUITING

    Baltimore, Maryland, 21201, United States

    Contact Phone: •••-•••-••••

  • University Of Pittsburgh

    RECRUITING

    Pittsburgh, Pennsylvania, 15213, United States

    Contact

  • University Of Wisconsin - Madison

    RECRUITING

    Madison, Wisconsin, 53792, United States

    Contact Phone: •••-•••-••••

  • University of Chicago Dept of Medicine

    RECRUITING

    Chicago, Illinois, 60637, United States

    Contact Phone: •••-•••-••••

  • University of Hawaii Cancer Center

    RECRUITING

    Honolulu, Hawaii, 96813, United States

    Contact Phone: •••-•••-••••

  • University of Iowa Hospitals & Clinics

    RECRUITING

    Iowa City, Iowa, 52242, United States

    Contact Phone: •••-•••-••••

  • VCU Medical Center

    RECRUITING

    Richmond, Virginia, 23298, United States

    Contact Phone: •••-•••-••••

  • Virginia Mason Medical Center

    RECRUITING

    Seattle, Washington, 98101, United States

    Contact Phone: •••-•••-••••

  • WMCHealth Advanced Physician Services

    RECRUITING

    Valhalla, New York, 10595, United States

    Contact Phone: •••-•••-••••

  • WVU Hospitals

    RECRUITING

    Morgantown, West Virginia, 26506, United States

    Contact Phone: •••-•••-••••

  • Washington University

    RECRUITING

    St Louis, Missouri, 63110, United States

    Contact Phone: •••-•••-••••

Conditions

Explore the condition pages connected to this study.