Massive 2000-Patient study launches to map rare liver disease, paving way for future cures
NCT ID NCT06297993
Summary
This study aims to gather detailed, real-world information from 2000 adults with primary sclerosing cholangitis (PSC), a rare liver disease. By tracking symptoms, test results, and health outcomes over time, researchers will create a comprehensive dataset. This information is crucial for designing and testing future potential treatments, but this study itself does not test any new drugs.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Locations
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Auckland University
RECRUITINGAuckland, New Zealand
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Beth Israel Deaconess Medical Center
RECRUITINGBoston, Massachusetts, 02215, United States
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California Pacific Medical Center
RECRUITINGSan Francisco, California, 94109, United States
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Centre de recherche du centre hospitalier de l'Université de Montréal (CRCHUM)
RECRUITINGMontreal, Quebec, H2X 0A9, Canada
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Indiana University
RECRUITINGIndianapolis, Indiana, 46202, United States
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Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, 02114, United States
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55901, United States
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Schiff Center for Liver Diseases / University of Miami
RECRUITINGMiami, Florida, 33136, United States
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UC Davis
RECRUITINGSacramento, California, 95817, United States
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University Health Network
RECRUITINGToronto, Ontario, M5G2C4, Canada
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University Medical Center Hamburg-Eppendorf
RECRUITINGHamburg, Hamburg, 20246, Germany
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University of Alberta
RECRUITINGEdmonton, Alberta, T6G 2X8, Canada
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University of California, San Francisco
RECRUITINGSan Francisco, California, 94143, United States
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University of Milano Bicocca
RECRUITINGMilan, Monza (MB), 20900, Italy
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Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 23298, United States
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Yale University
RECRUITINGNew Haven, Connecticut, 06510, United States
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Conditions
Explore the condition pages connected to this study.