Italian MPN patients share their stories in landmark Quality-of-Life study

NCT ID NCT04378855

Ongoing Knowledge-focused Sponsor: Gruppo Italiano Malattie EMatologiche dell'Adulto Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 26, 2026 · Updated 1 time

Summary

This study is collecting information on quality of life and symptoms from 572 Italian patients with certain types of blood cancers called myeloproliferative neoplasms (MPNs). Participants fill out questionnaires about how their disease and treatments affect their daily functioning and well-being. The goal is to build a platform to better understand patient experiences, not to test a new drug or therapy.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this study could help doctors better understand how myeloproliferative neoplasms affect patients' daily lives and well-being.
What could go wrong: This is an observational study, so it does not test any new treatment. Results may not lead to direct changes in care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

acquired polycythemia vera essential thrombocythemia Myeloproliferative Disorders myeloproliferative neoplasm primary myelofibrosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

MYELOPROLIFERATIVE NEOPLASM

Contacts and locations

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Locations

.C.D.U. Ematologia - Università del Piemonte Orientale Amedeo Avogadro

Novara, Italy
Ao Brotzu, Presidio Ospedaliero A. Businco - Cagliari - Sc Ematologia E Ctmo

Cagliari, Italy
Aon Ss. Antonio E Biagio E C. Arrigo - Alessandria - Soc Ematologia

Alessandria, Italy
Aou Careggi - Firenze - Sod Ematologia

Florence, Italy
Aou Città Della Salute E Della Scienza, Ospedale S. Giovanni Battista Molinette - Torino - Sc Ematologia - Università Degli Studi Di Torino

Torino, Italy
Aou Consorziale Policlinico - Bari - Uo Ematologia Con Trapianto

Bari, Italy
Aou Di Modena - Sc Ematologia

Modena, Italy
Aou Di Sassari - Cliniche Universitarie - Stabilimento Cliniche Di San Pietro - Uoc Ematologia

Sassari, Italy
Aou Federico Ii - Napoli - Uoc Ematologia

Naples, Italy
Aou Pisana - Uo Ematologia Universitaria

Pisa, Italy
Aou Policlinico P. Giaccone - Palermo - Uo Ematologia

Palermo, Italy
Asl Di Asti, Ospedali Riuniti - Presidio Ospedaliero Cardinal G. Massaia - Sc Oncologia

Asti, Italy
Asl Roma 2, Ospedale S. Eugenio- Ospedale S.Eugenio - Uoc Ematologia

Roma, Italy
Asl to 2, Torino Nord Emergenza San Giovanni Bosco - Ssd Ematologia

Torino, Italy
Ausl Della Romagna, Ospedale "Infermi" - Rimini - Uo Ematologia

Rimini, Italy
Ausl Di Reggio Emilia - Arcispedale Santa Maria Nuova, Irccs - Sc Ematologia

Reggio Emilia, Italy
Azienda Ospedaliera "S.Gerardo"

Monza, Italy
C.R.O.B. - I.R.C.C.S. - Rionero in Volture - Uoc Ematologia

Rionero in Vulture, Italy
Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico UOC Oncoematologia- Padiglione Marcora 2° piano

Milan, Italy
Fondazione Ircss Policlinico San Matteo - Pavia - Uo Ematologia

Pavia, Italy
Fondazione Policlinico Universitario Agostino Gemelli Irccs - Roma - Area Ematologica

Roma, Italy
Irccs Oncologico Istituto Tumori Giovanni Paolo Ii - Bari - Uo Ematologia

Bari, Italy
Istituto di Ematologia "Lorenzo e A. Seragnoli"

Bologna, Italy
Ospedale Mauriziano Umberto I - Torino - Scdu Ematologia

Torino, Italy
Università Degli Studi Di Roma "Sapienza" - Dipartimento Di Medicina Traslazionale E Di Precisione - U.O.C. Ematologia

Roma, Italy

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