No treatment, just tracking: PROPEL study follows kids with achondroplasia
NCT ID NCT04035811
First seen Apr 09, 2026 · Last updated May 16, 2026 · Updated 9 times
Summary
This study followed 271 children with achondroplasia (ages 2.5 to 17) to understand their growth, medical issues, and quality of life over time. No medication was given. The goal was to gather natural history data to help design future treatments.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Benioff Children's Hospital Oakland
Oakland, California, 94609, United States
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Birmingham Children's Hospital
Birmingham, United Kingdom
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Bristol Royal Hospital for Children
Bristol, England, United Kingdom
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Children's Hospital - London Health Sciences Center
London, Ontario, N6A 5W9, Canada
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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Cincinnati Children's Hospital
Cincinnati, Ohio, 45229, United States
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Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlino
Milan, 20122, Italy
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Haukeland Universitetssjukehus
Bergen, 5009, Norway
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Hopital Femme Mere Enfant
Lyon, France
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Hopital Necker-Enfants Malades
Paris, France
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Hopital des Enfants
Toulouse, France
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Hospital Universitario La Paz
Madrid, 24086, Spain
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Hospital Universitario Virgen de la Victoria
Málaga, Spain
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Hospital de Pediatría SAMIC Prof. Dr. Juan P. Garrahan
Buenos Aires, Argentina
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Johns Hopkins School of Medicine
Baltimore, Maryland, 21211, United States
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KK Women's and Children's Hospital
Singapore, 229899, Singapore
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Manchester University Children's Hospital
Manchester, United Kingdom
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Murdoch Children's Research Institute
Parkville, Australia
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Nemours Alfred I. Dupont Hospital for Children
Wilmington, Delaware, 19803, United States
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Oslo Universitetssykehus
Oslo, 0372, Norway
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Otto-von-Guericke-University Magdeburg Medical Fakulty
Magdeburg, 39120, Germany
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Queen Elizabeth University Hospital
Glasgow, United Kingdom
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Rare Disease Unit Fondazione Policlinico A Gemelli IRCCS
Rome, 00168, Italy
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Sheffield Children's Hospital
Sheffield, United Kingdom
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St. Thomas' Hospital
London, United Kingdom
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Stollery Children's Hospital
Edmonton, Alberta, T6G 2H7, Canada
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University of Missouri
Columbia, Missouri, 65211, United States
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University of Montreal
Montreal, Quebec, H3C 3J7, Canada
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University of Ottawa
Ottawa, Ontario, K1N 6N5, Canada
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University of Wisconsin Madison - Waisman Center Bone Dysplasia Clinic
Madison, Wisconsin, 53705, United States
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Vanderbilt University Medical Center
Nashville, Tennessee, 37232, United States
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Vithas Hospital San Jose
Barcelona, 08305, Spain
Conditions
Explore the condition pages connected to this study.