What do families want to know from genetic tests? study explores preferences
NCT ID NCT02814747
First seen Feb 06, 2026 · Last updated May 15, 2026 · Updated 14 times
Summary
This study looked at how families of children with rare developmental disorders feel about receiving extra or unclear results from advanced genetic testing. Researchers surveyed and interviewed over 500 parents to understand their preferences and experiences. The goal is to help doctors communicate better and get proper consent before using these powerful tests in everyday care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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CHU Dijon Bourgogne
Dijon, 21079, France
Conditions
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