Massive study tracks rare blood disease in over 6,000 patients
NCT ID NCT01374360
Summary
This registry study collected information from over 6,000 patients with Paroxysmal Nocturnal Hemoglobinuria (PNH), a rare blood disorder. The main goal was to monitor long-term safety of specific treatments and understand how the disease progresses over time. Researchers gathered data on side effects, disease symptoms, and patient outcomes without testing new treatments.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for PAROXYSMAL NOCTURNAL HEMOGLOBINURIA are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Contact the PNH Registry at Alexion Pharmaceuticals, Inc. for worldwide locations.
Boston, Massachusetts, 02210, United States
Conditions
Explore the condition pages connected to this study.