Scientists watch and learn from rare kidney disease
NCT ID NCT04982393
Summary
This study aims to better understand the natural course of Primary Hyperoxaluria Type 1 (PH1), a rare genetic disorder that causes kidney stones and kidney damage. Researchers will observe 207 patients already diagnosed with PH1 to see how the disease progresses over time in the real world. A key part of the study is to monitor the long-term safety and effectiveness of the drug lumasiran in patients who are taking it as part of their regular care.
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Contacts and locations
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Locations
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Clinical Trial Site
Phoenix, Arizona, 85016, United States
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Clinical Trial Site
Washington D.C., District of Columbia, 20010, United States
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Clinical Trial Site
Boston, Massachusetts, 02115, United States
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Clinical Trial Site
Rochester, Minnesota, 55905, United States
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Clinical Trial Site
Cincinnati, Ohio, 45229, United States
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Clinical Trial Site
Pittsburgh, Pennsylvania, 15213, United States
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Clinical Trial Site
Dallas, Texas, 75390, United States
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Clinical Trial Site
Houston, Texas, 77030, United States
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Clinical Trial Site
Ghent, Belgium
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Clinical Trial Site
Liège, Belgium
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Clinical Trial Site
Hamilton, Ontario, Canada
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Clinical Trial Site
Toronto, Ontario, Canada
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Clinical Trial Site
Laurier, Quebec, Canada
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Clinical Trial Site
Bordeaux, France
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Clinical Trial Site
Lyon, France
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Clinical Trial Site
Paris, France
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Clinical Trial Site
Berlin, Germany
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Clinical Trial Site
Cologne, Germany
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Clinical Trial Site
Hamburg, Germany
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Clinical Trial Site
Jerusalem, Israel
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Clinical Trial Site
Orbassano, Torino, Italy
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Clinical Trial Site
Milan, Italy
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Clinical Trial Site
Verona, Italy
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Clinical Trial Site
Amsterdam, Netherlands
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Clinical Trial Site
Santa Cruz de Tenerife, Canary Islands, Spain
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Clinical Trial Site
Barcelona, Spain
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Clinical Trial Site
Las Palmas, Spain
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Clinical Trial Site
Bern, Switzerland
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Clinical Trial Site
London, England, United Kingdom
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Clinical Trial Site
London, United Kingdom
Conditions
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