Researchers watch and learn: PH1 study tracks 207 patients over time
NCT ID NCT04982393
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows 207 people with primary hyperoxaluria type 1 (PH1), a rare kidney disease, to see how the condition progresses over time. Researchers are also checking the long-term safety and real-world effectiveness of the drug lumasiran. Participants are not given any new treatment—just observed and monitored as part of their regular care.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Clinical Trial Site
Phoenix, Arizona, 85016, United States
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Clinical Trial Site
Washington D.C., District of Columbia, 20010, United States
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Clinical Trial Site
Boston, Massachusetts, 02115, United States
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Clinical Trial Site
Rochester, Minnesota, 55905, United States
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Clinical Trial Site
Cincinnati, Ohio, 45229, United States
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Clinical Trial Site
Pittsburgh, Pennsylvania, 15213, United States
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Clinical Trial Site
Dallas, Texas, 75390, United States
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Clinical Trial Site
Houston, Texas, 77030, United States
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Clinical Trial Site
Ghent, Belgium
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Clinical Trial Site
Liège, Belgium
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Clinical Trial Site
Hamilton, Ontario, Canada
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Clinical Trial Site
Toronto, Ontario, Canada
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Clinical Trial Site
Laurier, Quebec, Canada
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Clinical Trial Site
Bordeaux, France
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Clinical Trial Site
Lyon, France
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Clinical Trial Site
Paris, France
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Clinical Trial Site
Berlin, Germany
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Clinical Trial Site
Cologne, Germany
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Clinical Trial Site
Hamburg, Germany
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Clinical Trial Site
Jerusalem, Israel
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Clinical Trial Site
Orbassano, Torino, Italy
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Clinical Trial Site
Milan, Italy
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Clinical Trial Site
Verona, Italy
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Clinical Trial Site
Amsterdam, Netherlands
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Clinical Trial Site
Santa Cruz de Tenerife, Canary Islands, Spain
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Clinical Trial Site
Barcelona, Spain
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Clinical Trial Site
Las Palmas, Spain
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Clinical Trial Site
Bern, Switzerland
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Clinical Trial Site
London, England, United Kingdom
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Clinical Trial Site
London, United Kingdom