Massive study aims to unlock mysteries of teen gynecologic disorders

NCT ID NCT04717349

First seen Jun 27, 2026 · Last updated Aug 07, 2026 · Updated 7 times

Summary

This study is collecting medical data, blood, saliva, and tissue samples from up to 11,000 children, teens, and adults with known or suspected gynecologic conditions. The goal is to create a large database to better understand these conditions, including disorders of sex development, reproductive cancers, and structural issues. No treatments or interventions are being tested; this is purely an observational research effort.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for DISORDERS OF SEX DEVELOPMENT (DSD) are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

Congenital Abnormalities disorder of sexual differentiation

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States