Patients share personal stories of family planning with rare lung disease
NCT ID NCT07357558
Summary
This study aims to understand the personal experiences of adults living with Primary Ciliary Dyskinesia (PCD) regarding fertility, pregnancy, and parenthood. Researchers will conduct in-depth interviews with 30 adults in the UK who have a confirmed or likely PCD diagnosis. The goal is to gather firsthand accounts to better understand the challenges and impacts of reproductive issues for people with this rare condition.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University Hospitals Southampton NHS Trust
RECRUITINGSouthampton, United Kingdom
Contact Email: •••••@•••••
Contact Email: •••••@•••••
Conditions
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