Long-Term PBC study reveals Real-World treatment patterns

NCT ID NCT02932449

First seen Feb 23, 2026 · Last updated May 15, 2026 · Updated 9 times

Summary

This study followed 711 adults with primary biliary cholangitis (PBC) for 5 years to learn how the disease is treated in everyday medical practice. Researchers collected data on treatment regimens, patient groups often left out of drug trials, and side effects. The goal was to better understand long-term outcomes and improve care for all PBC patients.

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Contacts and locations

Locations

  • Banner University Medical Center

    Phoenix, Arizona, 85006, United States

  • Baylor,Scott and White All Saints

    Fort Worth, Texas, United States

  • Bon Secours Liver Institute of Virginia

    Richmond, Virginia, 23226, United States

  • California Liver Research Institute

    Pasadena, California, 91105, United States

  • Center for Liver Disease and Transplant at CMC

    Charlotte, North Carolina, 28204, United States

  • Columbia University Medical Center

    New York, New York, 10032, United States

  • Duke University Medical Center

    Durham, North Carolina, 27710, United States

  • Gastro Florida

    Clearwater, Florida, 33762, United States

  • Illinois Gastroenterology Group

    Arlington Heights, Illinois, 60005, United States

  • Institute for Liver Health

    Chandler, Arizona, 85224, United States

  • Liver Associates of Texas, P.A.

    Houston, Texas, 77030, United States

  • Mayo Clinic

    Phoenix, Arizona, 85054, United States

  • Mercy Medical Center, GI Research

    Baltimore, Maryland, 21202, United States

  • NYU Langone Health

    New York, New York, 10016, United States

  • Ohio State University Medical Center

    Columbus, Ohio, 43210, United States

  • Piedmont Atlanta Hospital

    Atlanta, Georgia, 30309, United States

  • Pinnacle Clinical Research

    Live Oak, Texas, 78233, United States

  • Rush University Medical Center

    Chicago, Illinois, 60612, United States

  • SCFLD/University of Miami

    Miami, Florida, 33136, United States

  • Saint Louis University

    St Louis, Missouri, 63104, United States

  • Sandra Atlas Bass Center for Liver Diseases

    Manhasset, New York, 11030, United States

  • Southern Therapy and Advanced Research LLC (STAR)

    Jackson, Mississippi, 39216, United States

  • Stanford University Medical Center

    Palo Alto, California, 94304, United States

  • UT Southwestern Medical Center

    Dallas, Texas, 75390, United States

  • University of Arkansas

    Little Rock, Arkansas, 72204, United States

  • University of California Davis

    Sacramento, California, 95817, United States

  • University of Chicago

    Chicago, Illinois, 60637, United States

  • University of Colorado- Anschutz Medical Campus

    Aurora, Colorado, 80045, United States

  • University of Florida Hepatology Research

    Gainesville, Florida, 32610, United States

  • University of Iowa

    Iowa City, Iowa, 52242, United States

  • University of Michigan

    Ann Arbor, Michigan, 48109, United States

  • University of Nebraska

    Omaha, Nebraska, 68106, United States

  • University of North Carolina at Chapel Hill

    Chapel Hill, North Carolina, 27599, United States

  • University of Pennsylvania

    Philadelphia, Pennsylvania, 19104, United States

  • University of Washington

    Seattle, Washington, 98104, United States

  • University of Wisconsin

    Madison, Wisconsin, 53705, United States

  • Virginia Commonwealth University (VCU)

    Richmond, Virginia, 23298, United States

  • Weill Cornell Medical College

    New York, New York, 10021, United States

  • Yale Internal Medicine, Digestive Diseases

    New Haven, Connecticut, 06520, United States

Conditions

Explore the condition pages connected to this study.