Scientists track rare genetic hearing loss over time

NCT ID NCT05572073

Recruiting now Knowledge-focused Sponsor: Akouos, Inc. Source: ClinicalTrials.gov ↗

Summary

This study aims to learn how hearing changes over time in people with hearing loss caused by a specific gene called otoferlin. It will follow 150 participants by looking at their past medical records and tracking them for up to 5 years. The goal is to gather detailed information to help design future treatments, but this study itself does not test any new therapies.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

Ankara University
RECRUITING

Ankara, Turkey, 06230, Turkey (Türkiye)
Children's Hospital of Philadelphia
RECRUITING

Philadelphia, Pennsylvania, 19104, United States
Cincinnati Children's Hospital Medical Center
RECRUITING

Cincinnati, Ohio, 45229, United States
Murdoch Children's Research Institute
WITHDRAWN

Parkville, Victoria, VIC 3052, Australia
National Taiwan University Hospital
RECRUITING

Taipei, 100, Taiwan
Sant Joan de Déu Barcelona Hospital
RECRUITING

Esplugues de Llobregat, Barcelona, 08950, Spain
University College London
RECRUITING

London, United Kingdom, NW1 2PG, United Kingdom
University Hospital in Tübingen
RECRUITING

Tübingen, 72076, Germany
University of Iowa
RECRUITING

Iowa City, Iowa, 52242, United States
Vanderbilt University Medical Center
RECRUITING

Nashville, Tennessee, 37232-8605, United States

Conditions

Explore the condition pages connected to this study.

SENSORINEURAL HEARING LOSS, BILATERAL