Study on rare disease treatment withdrawn before starting

NCT ID NCT06227429

Summary

This study aimed to collect information on how children in China with a rare, serious liver disease (hereditary tyrosinemia type 1) fare while taking the medication nitisinone during their normal doctor visits. It was an observational study, meaning it would not test a new treatment but simply watch and record what happened. The study was withdrawn before any patients could be enrolled.

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Contacts and locations

Locations

  • Swedish Orphan Biovitrum Research Site

    Beijing, China

  • Swedish Orphan Biovitrum Research Site

    Chongqing, China

  • Swedish Orphan Biovitrum Research Site

    Hefei, China

  • Swedish Orphan Biovitrum Research Site

    Wuhan, China

Conditions

Explore the condition pages connected to this study.