New hope for HHT nosebleeds: drug trial aims to stop the bleeding

NCT ID NCT04976036

First seen Mar 26, 2026 · Last updated May 16, 2026 · Updated 8 times

Summary

This study tests whether a twice-daily capsule called nintedanib can reduce the frequency and severity of nosebleeds in people with hereditary hemorrhagic telangiectasia (HHT), a condition that causes abnormal blood vessels. About 48 adults with moderate to severe nosebleeds will be randomly assigned to receive nintedanib or a placebo for 16 weeks. Participants will track their nosebleeds daily in a diary for 8 months, including a 2-month observation period before treatment and 8 weeks after treatment ends.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Angiology Department, Lausanne University Hospital

    COMPLETED

    Lausanne, Canton of Vaud, 1011, Switzerland

  • Clermont-Ferrand university hospital

    RECRUITING

    Clermont-Ferrand, 63000, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Lyon University Hospital, Dpt of genetics

    RECRUITING

    Bron, 69677, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.