New drug combo aims to slow lung damage in rare muscle disease

NCT ID NCT05799755

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study tested whether adding nintedanib (OFEV) to standard immunosuppressant therapy can improve symptoms in people with myositis-associated interstitial lung disease, a condition where lung tissue becomes scarred and stiff. 49 adults in the U.S. participated, receiving either nintedanib or a placebo alongside their usual medications. The main goal was to measure changes in breathing-related quality of life using a questionnaire.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Nintedanib (also known as OFEV)

What this could lead to

If it works, this could provide a new treatment option to slow lung scarring and improve breathing in people with myositis-related lung disease.

What could go wrong

This is an early exploratory trial with only 49 participants, so results may not be conclusive. Nintedanib can cause side effects like diarrhea and liver issues.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for MYOSITIS ASSOCIATED INTERSTITIAL LUND DISEASE (MA-ILD) are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Columbia University Irving Medical Center

    New York, New York, 10032, United States

  • Mayo Clinic Arizona

    Scottsdale, Arizona, 85259, United States

  • National Jewish Health

    Denver, Colorado, 80206, United States

  • Northwell Health

    New York, New York, 11021, United States

  • University of Alabama

    Birmingham, Alabama, 35294, United States

  • University of Chicago

    Chicago, Illinois, 60637, United States

  • University of Kansas Medical Center

    Kansas City, Kansas, 66160, United States

  • University of Pittsburgh

    Pittsburgh, Pennsylvania, 15216, United States

  • University of South Florida

    Tampa, Florida, 33612, United States

  • University of Utah Health Sciences Center

    Salt Lake City, Utah, 84112, United States