New study tracks rare nerve disease to unlock its secrets
NCT ID NCT03920774
First seen Nov 10, 2025 · Last updated May 20, 2026 · Updated 25 times
Summary
This study follows people with familial dysautonomia (FD), a rare nerve disorder, to learn how the disease changes over time. Researchers will collect routine medical test results and optional blood samples to create a detailed database. The goal is to find biological markers that can help diagnose and treat FD better in the future.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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Dysautonomia Center - School of Medicine -NYU Langone Medical Center
RECRUITINGNew York, New York, 10016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Email: •••••@•••••
Contact
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Sheba Medical Center - Safra Children's Hospital
RECRUITINGTel Litwinsky, Ramat Gan, 52621, Israel
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.