Scientists map the journey of a rare muscle disease
NCT ID NCT06101940
Summary
This study aims to better understand Myotonic Dystrophy Type 1 (DM1) in Chinese patients by observing how the disease progresses over time. Researchers will follow 500 adult patients, collecting detailed health information through tests, scans, and questionnaires. The goal is to create a clearer picture of the disease to help guide future care and research.
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Contacts and locations
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Locations
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Chifeng Municipal Hospital
Chifeng, Neimenggu, China
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Children's Hospital of Fudan University
Shanghai, Shanghai Municipality, China
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Chinese People's Liberation Army General Hospital
Beijing, Beijing Municipality, China
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First Affiliated Hospital of Chongqing Medical University
Chongqing, Chongqing Municipality, China
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First Hospital of Shanxi Medical University
Taiyuan, Shanxi, China
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Fujian Medical University Union Hospital
Fuzhou, Fujian, China
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Huashan Hospital
Shanghai, 200040, China
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Peking University First Hospital
Beijing, Beijing Municipality, China
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Qilu Hospital of Shandong University
Jinan, Shandong, China
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Sichuan Provincial People's Hospital
Chengdu, Sichuan, China
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Southern Hospital of Southern Medical University
Guangzhou, Guangdong, China
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The First Affiliated Hospital of Nanchang University)
Nanchang, Jiangxi, China
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The First Affiliated Hospital of Soochow University
Suzhou, Jiangsu, China
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The First Bethune Hospital of Jilin University
Changchun, Jilin, China
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The First People's Hospital of Yancheng
Yancheng, Jiangsu, China
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The General Hospital of Western Theater Command
Chengdu, Sichuan, China
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The Third Hospital of Hebei Medical University
Shijiazhuang, Hebei, China
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Wuhan University People's Hospital
Wuhan, Hubei, China
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Xi'an Gaoxin Hospital
Xi’an, Shanxi, China
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Xi'an People's Hospital
Xi’an, Shanxi, China
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Yunnan Provincial People's Hospital
Kunming, Yunnan, China
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Zhongda Hospital Southeast University
Nanjing, Jiangsu, China
Conditions
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