Scientists map the journey of a rare muscle disease

NCT ID NCT06101940

ENROLLING_BY_INVITATION Knowledge-focused Sponsor: Huashan Hospital Source: ClinicalTrials.gov ↗

Summary

This study aims to better understand Myotonic Dystrophy Type 1 (DM1) in Chinese patients by observing how the disease progresses over time. Researchers will follow 500 adult patients, collecting detailed health information through tests, scans, and questionnaires. The goal is to create a clearer picture of the disease to help guide future care and research.

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Contacts and locations

Locations

  • Chifeng Municipal Hospital

    Chifeng, Neimenggu, China

  • Children's Hospital of Fudan University

    Shanghai, Shanghai Municipality, China

  • Chinese People's Liberation Army General Hospital

    Beijing, Beijing Municipality, China

  • First Affiliated Hospital of Chongqing Medical University

    Chongqing, Chongqing Municipality, China

  • First Hospital of Shanxi Medical University

    Taiyuan, Shanxi, China

  • Fujian Medical University Union Hospital

    Fuzhou, Fujian, China

  • Huashan Hospital

    Shanghai, 200040, China

  • Peking University First Hospital

    Beijing, Beijing Municipality, China

  • Qilu Hospital of Shandong University

    Jinan, Shandong, China

  • Sichuan Provincial People's Hospital

    Chengdu, Sichuan, China

  • Southern Hospital of Southern Medical University

    Guangzhou, Guangdong, China

  • The First Affiliated Hospital of Nanchang University)

    Nanchang, Jiangxi, China

  • The First Affiliated Hospital of Soochow University

    Suzhou, Jiangsu, China

  • The First Bethune Hospital of Jilin University

    Changchun, Jilin, China

  • The First People's Hospital of Yancheng

    Yancheng, Jiangsu, China

  • The General Hospital of Western Theater Command

    Chengdu, Sichuan, China

  • The Third Hospital of Hebei Medical University

    Shijiazhuang, Hebei, China

  • Wuhan University People's Hospital

    Wuhan, Hubei, China

  • Xi'an Gaoxin Hospital

    Xi’an, Shanxi, China

  • Xi'an People's Hospital

    Xi’an, Shanxi, China

  • Yunnan Provincial People's Hospital

    Kunming, Yunnan, China

  • Zhongda Hospital Southeast University

    Nanjing, Jiangsu, China

Conditions

Explore the condition pages connected to this study.