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Global watchdog launches to monitor rare muscle disease treatments

NCT ID NCT04202341

Recruiting now Knowledge-focused Sponsor: Alexion Pharmaceuticals, Inc. Source: ClinicalTrials.gov ↗

Summary

This study is creating a worldwide registry to track 500 patients with generalized myasthenia gravis who have received specific antibody treatments. Researchers will collect health information over up to 5 years to understand how these treatments affect patients' daily lives and safety in real-world settings. The study doesn't test new treatments but observes patients already using approved medications.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Clincal Trial Site

    RECRUITING

    Gainesville, Florida, 32608, United States

  • Clinical Trial Site

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    Birmingham, Alabama, 35294, United States

  • Clinical Trial Site

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    Scottsdale, Arizona, 85251, United States

  • Clinical Trial Site

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    Fresno, California, 93710, United States

  • Clinical Trial Site

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    Orange, California, 92868, United States

  • Clinical Trial Site

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    Rancho Mirage, California, 92270, United States

  • Clinical Trial Site

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    Sylmar, California, 91342, United States

  • Clinical Trial Site

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    Colorado Springs, Colorado, 80907, United States

  • Clinical Trial Site

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    Fort Collins, Colorado, 80528, United States

  • Clinical Trial Site

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    New Haven, Connecticut, 06520, United States

  • Clinical Trial Site

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    Washington D.C., District of Columbia, 10010, United States

  • Clinical Trial Site

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    Clearwater, Florida, 33761, United States

  • Clinical Trial Site

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    Jacksonville, Florida, 32209, United States

  • Clinical Trial Site

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    Tampa, Florida, 33612, United States

  • Clinical Trial Site

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    Augusta, Georgia, 30912, United States

  • Clinical Trial Site

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    Iowa City, Iowa, 52242, United States

  • Clinical Trial Site

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    Lexington, Kentucky, 40503, United States

  • Clinical Trial Site

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    Boston, Massachusetts, 02215, United States

  • Clinical Trial Site

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    Lansing, Michigan, 48824, United States

  • Clinical Trial Site

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    Columbia, Missouri, 65212, United States

  • Clinical Trial Site

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    New Hyde Park, New York, 11042, United States

  • Clinical Trial Site

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    Chapel Hill, North Carolina, 27599, United States

  • Clinical Trial Site

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    Charlotte, North Carolina, 28207, United States

  • Clinical Trial Site

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    Durham, North Carolina, 27705, United States

  • Clinical Trial Site

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    Dayton, Ohio, 45459, United States

  • Clinical Trial Site

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    Philadelphia, Pennsylvania, 19104, United States

  • Clinical Trial Site

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    Chattanooga, Tennessee, 37403, United States

  • Clinical Trial Site

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    Knoxville, Tennessee, 37920, United States

  • Clinical Trial Site

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    Dallas, Texas, 75206, United States

  • Clinical Trial Site

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    Houston, Texas, 77030, United States

  • Clinical Trial Site

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    Burlington, Vermont, 05401, United States

  • Clinical Trial Site

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    Milwaukee, Wisconsin, 53215, United States

  • Clinical Trial Site

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    Vienna, 1090, Austria

  • Clinical Trial Site

    RECRUITING

    Brampton, Ontario, L6R 3J7, Canada

  • Clinical Trial Site

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    London, Ontario, N6A 5A5, Canada

  • Clinical Trial Site

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    Montreal, Quebec, H2X 3E4, Canada

  • Clinical Trial Site

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    Chengdu, Sichuan, 610041, China

  • Clinical Trial Site

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    Beijing, 100730, China

  • Clinical Trial Site

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    Changchun, 130021, China

  • Clinical Trial Site

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    Chengdu, 610072, China

  • Clinical Trial Site

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    Guangzhou, 510080, China

  • Clinical Trial Site

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    Jinan, 250021, China

  • Clinical Trial Site

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    Nanchang, 330006, China

  • Clinical Trial Site

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    Qingdao, 266003, China

  • Clinical Trial Site

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    Shijiazhuang, 050000, China

  • Clinical Trial Site

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    Hanover, Hannover, 30625, Germany

  • Clinical Trial Site

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    Milan, 20133, Italy

  • Clinical Trial Site

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    Naples, 80138, Italy

  • Clinical Trial Site

    RECRUITING

    Abhā, 62523, Saudi Arabia

  • Clinical Trial Site

    RECRUITING

    Jeddah, 22384, Saudi Arabia

  • Clinical Trial Site

    RECRUITING

    Riyadh, 14611, Saudi Arabia

Conditions

Explore the condition pages connected to this study.

GENERALIZED MYASTHENIA GRAVIS