Massive study launched to map rare disease journey
NCT ID NCT06036693
Summary
This study aims to gather detailed health information from 1000 French patients with a group of rare genetic disorders called Mucopolysaccharidosis (MPS). Researchers will look back at past medical records and follow patients forward to understand how these diseases naturally progress and how different treatments affect them. The goal is to build a comprehensive picture to help improve future care.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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American Memorial Hospital
NOT_YET_RECRUITINGReims, France
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Centre Hospitalier Universitaire d'Angers
RECRUITINGAngers, France
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Centre Hospitalier de Pau
RECRUITINGPau, France
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Clinique Monié
NOT_YET_RECRUITINGToulouse, France
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Hôpital Armand Trousseau
RECRUITINGParis, France
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Hôpital Beaujon
RECRUITINGClichy, France
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Hôpital Brabois
RECRUITINGNancy, France
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Hôpital Charles Nicolle
NOT_YET_RECRUITINGRouen, France
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Hôpital Clocheville
RECRUITINGTours, France
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Hôpital Gui de Chauliac
RECRUITINGMontpellier, France
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Hôpital Jeanne de Flandre
RECRUITINGLille, France
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Hôpital Morvan
RECRUITINGBrest, France
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Hôpital Necker-Enfants Malades
RECRUITINGParis, France
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Hôpital Pontchaillou
RECRUITINGRennes, France
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Hôpital Raymond-Poincaré
NOT_YET_RECRUITINGGarches, France
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Hôpital Robert Debré
RECRUITINGParis, France
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Hôpital d'Estaing
NOT_YET_RECRUITINGClermont-Ferrand, France
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Hôpital de Hautepierre
NOT_YET_RECRUITINGStrasbourg, France
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Hôpital de la Croix Saint-Simon
NOT_YET_RECRUITINGParis, France
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Hôpital de la Pitié-Salpêtrière
RECRUITINGParis, France
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Hôpital de la Timone
RECRUITINGMarseille, France
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Hôpital des Enfants
NOT_YET_RECRUITINGToulouse, France
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Hôpital des Enfants - Groupe Hospitalier Pellegrin
NOT_YET_RECRUITINGBordeaux, France
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Conditions
Explore the condition pages connected to this study.