Study probes hidden mental toll of rare brain disease in kids
NCT ID NCT05772572
Summary
This study aimed to understand why children and young adults with Moyamoya disease, a rare condition that causes strokes, often continue to have pain and headaches even after successful brain surgery. Researchers surveyed 21 patients and their parents to explore links between these ongoing symptoms and mental health factors like anxiety, depression, and family relationships. The goal is to use this knowledge to create better support programs that improve patients' quality of life.
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Contacts and locations
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Locations
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Hôpital Necker-Enfants Malades
Paris, 75015, France
Conditions
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