New hope for toddlers with rare fat-loss disease as drug trial begins

NCT ID NCT06502990

First seen Jan 22, 2026 · Last updated May 16, 2026 · Updated 20 times

Summary

This study tests a drug called metreleptin in children under 6 who have generalized lipodystrophy, a rare condition where the body loses fat tissue, leading to severe diabetes and high blood fats. The goal is to see if the drug safely lowers blood sugar and fat levels. About 15 children who have not taken metreleptin before will join this open-label trial.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Assistance Publique-Hopitaux de Paris (AP-HP) - Hopital Universitaire Robert-Debre

    RECRUITING

    Paris, France

    Contact

  • Azienda Ospedaliera Universitaria "Federico II"

    RECRUITING

    Naples, 80131, Italy

    Contact

  • Azienda Ospedaliero Universitaria Maggiore della Carità di Novara

    RECRUITING

    Novara, 28100, Italy

    Contact

  • Azienda Ospedaliero Universitaria Pisana

    RECRUITING

    Pisa, 56124, Italy

    Contact

  • Azienda Ospedaliero-Universitaria di Parma

    RECRUITING

    Parma, 43126, Italy

    Contact

  • Hôpital Necker - Enfants Malades

    RECRUITING

    Paris, 75015, France

    Contact

  • IRCCS Ospedale Pediatrico Bambino Gesù

    RECRUITING

    Chieti, 66100, Italy

    Contact

  • IRCCS Ospedale Pediatrico Bambino Gesù

    RECRUITING

    Rome, 00165, Italy

    Contact

  • Ospedale Filippo Del Ponte Varese - ASST Sette Laghi

    RECRUITING

    Varese, 21100, Italy

    Contact

  • UZ Leuven

    RECRUITING

    Leuven, 3000, Belgium

    Contact

  • Universitaetsklinikum Ulm - Klinik fuer Kinder- und Jugendmedizin

    RECRUITING

    Ulm, 89075, Germany

    Contact

  • Universitätsklinikum Hamburg-Eppendorf

    NOT_YET_RECRUITING

    Hamburg, 20251, Germany

    Contact

Conditions

Explore the condition pages connected to this study.