Experimental drug aims to boost immunity in rare WHIM syndrome

NCT ID NCT03995108

First seen Jul 06, 2026 · Last updated Jul 07, 2026 · Updated 1 time

Summary

This phase 3 trial tests whether mavorixafor can raise neutrophil levels in people with WHIM syndrome, a rare genetic condition that weakens the immune system. Participants receive either mavorixafor or a placebo to see if the drug helps maintain infection-fighting white blood cells above a safe threshold. The study also tracks safety and long-term effects in an open-label extension.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance
mavorixafor
What this could lead to
If successful, mavorixafor could become the first approved treatment for WHIM syndrome, helping patients fight infections more effectively.
What could go wrong
This is a small trial (31 participants), and results may not apply to all patients. The drug may cause side effects or fail to show meaningful clinical benefit.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for WHIM SYNDROME are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Aarhus University Hospital

    Aarhus, 8000, Denmark

  • Academician I.P. Pavlov First Saint Petersburg State Medical University

    Saint Pertersburg, 197022, Russia

  • CHU Paris Est, Hôpital d'Enfants Armand-Trousseau

    Paris, 75571, France

  • CHU de Lyon, Institut d'Hematologie et d'Oncologie Pediatrique

    Lyon, Rhne, 69008, France

  • California Dermatology Institute

    Thousand Oaks, California, 91320, United States

  • Children's Health Queensland Hospital

    South Brisbane, Queensland, 4101, Australia

  • Cukurova University Faculty of Medicine

    Sarıçam, Adana, 1330, Turkey (Türkiye)

  • Dmitry Rogachev National Research Center of Pediatric Hematology, Oncology and Immunology

    Moscow, 117997, Russia

  • Emma Children's Hospital Academic Medical Center (AMC)

    Amsterdam, 1105 AZ, Netherlands

  • HaEmek Medical Center

    Afula, 1834111, Israel

  • Hopital Necker-Enfants Malades

    Paris, 75743, France

  • Hospital Sant Joan de Deu Barcelona

    Barcelona, Esplugues de Llobregat, 8950, Spain

  • Hospital Universitario Virgen del Rocío

    Seville, Sevilla, 41013, Spain

  • Johns Hopkins University Medical Center

    Baltimore, Maryland, 21224, United States

  • Medical University of Vienna - Medizinische Universität Wien

    Vienna, 1090, Austria

  • Seoul National University Hospital, Children's Hospital

    Seoul, 03080, South Korea

  • University of California San Diego Health/Rady Children's Hospital

    San Diego, California, 92123, United States

  • University of Debrecen, Affiliated Department of Infectology

    Debrecen, Hajdú-Bihar, H-4031, Hungary

  • University of Iowa

    Iowa City, Iowa, 52242, United States

  • University of Texas Southwestern Medical Center

    Dallas, Texas, 75390-9020, United States

  • University of Washington Medical Center

    Seattle, Washington, 98195, United States

  • Università degli Studi di Brescia, Scienze Cliniche e Sperimentali

    Brescia, Piazza Del Mercato, 25123, Italy

  • Wesley Hospital

    Auchenflower, Queensland, 4006, Australia

More trials for these conditions

Other studies related to the condition(s) this trial covers.