Experimental drug aims to tame rare 'Fire' in Children's immune systems

NCT ID NCT04641442

Summary

This study is testing an investigational drug called MAS825 to see if it can safely prevent disease flares in people with rare, genetic autoinflammatory diseases like NLRC4-GOF and XIAP deficiency. The trial involves about 17 patients, including infants and adults, who have one of these specific genetic mutations. Researchers will compare patients receiving MAS825 to those on a placebo to measure if the drug reduces flare-ups and improves symptoms over several years.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for NLRC4-GOF, AIFEC (AUTOINFLAMMATION WITH INFANTILE ENTEROCOLITIS), XIAP DEFICIENCY, CDC42 MUTATIONS are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Locations

  • Bambino Gesu Hospital

    Roma, RM, 00165, Italy

  • Centrum detske revmatologie a autoinflamatornich onemocneni

    Prague, CZ, 121 00, Czechia

  • Childrens Hospital of Philadelphia

    Philadelphia, Pennsylvania, 19104-4399, United States

  • Children´s Hospital of Philadelphia

    Philadelphia, Pennsylvania, 19104, United States

  • Cincinnati Children's Hospital

    Cincinnati, Ohio, 45229, United States

  • Cincinnati Childrens Hospital

    Cincinnati, Ohio, 45229, United States

  • Great Ormond Street Hospital

    London, WC1N 3JH, United Kingdom

  • Hospital Clinic Barcelona

    Barcelona, Catalonia, 08036, Spain

  • Novartis Investigative Site

    Prague, 128 08, Czechia

  • Novartis Investigative Site

    Prague, 150 06, Czechia

  • Novartis Investigative Site

    Paris, 75970, France

  • Novartis Investigative Site

    Roma, RM, 00165, Italy

  • Novartis Investigative Site

    Chiba, 266-0007, Japan

  • Novartis Investigative Site

    Madrid, 28046, Spain

  • Novartis Investigative Site

    London, NW3 2QG, United Kingdom

  • Novartis Investigative Site

    London, WC1N 3JH, United Kingdom

  • Seattle Childrens Hospital

    Seattle, Washington, 98105, United States

  • Seattle Children´s Hospital

    Seattle, Washington, 98105, United States

  • Texas Childrens Hospital

    Houston, Texas, 77030, United States

  • Texas Children´s Hospital

    Houston, Texas, 77030, United States

  • Ustav Imunologie 2 LF UK a FN Motol

    Prague, 150 06, Czechia

Conditions

Explore the condition pages connected to this study.