Can we spot hidden muscle loss in kids with a rare lung condition?

NCT ID NCT07740538

Not yet recruiting Knowledge-focused Sponsor: Izmir Democracy University Source: ClinicalTrials.gov ↗

First seen Jul 31, 2026 · Last updated Jul 31, 2026

Summary

This study investigates how common malnutrition and sarcopenia (muscle loss) are in children and adolescents with primary ciliary dyskinesia (PCD), a rare genetic condition affecting the lungs. Researchers will measure grip strength, body composition, and nutritional risk in 15 participants to understand these issues better. The goal is to gather knowledge that could improve care for this group.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this could help identify children with PCD who are at risk for malnutrition or muscle weakness, leading to better supportive care.
What could go wrong: This is a small observational study with only 15 participants, so findings may not apply to all children with PCD. It does not test any treatment.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Malnutrition primary ciliary dyskinesia Sarcopenia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

PRIMARY CILIARY DYSKINESIA (PCD)

Contacts and locations

Locations

Izmir Democracy University

Izmir, 35140, Turkey (Türkiye)

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