Massive study launches to unravel mysteries of rare lymphatic diseases
NCT ID NCT05731141
First seen Nov 01, 2025 · Last updated May 13, 2026 · Updated 25 times
Summary
This study aims to learn more about lymphatic anomalies—problems with the body's lymph system that can cause pain, swelling, and immune issues. Researchers will follow up to 1,200 people of any age with these conditions, plus their healthy family members, for many years. Participants will have regular checkups, blood tests, genetic testing, and imaging to help doctors better understand these rare diseases and develop better treatments in the future.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Children's Hospital of Philadelphia
NOT_YET_RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.